Just smile and wave boys, just smile and wave…
May 25th, 2009
This has become the theme of our adventures out. It’s funny because we have been trying to teach Tyler that it’s not nice to stare at people. But, with what we deal with here it seems a little unfair to enforce it! Today we were at the Lotte Mart and people just love to see us. haha I think Bradley’s fire red hair is what really draws attention. Along with that, he loves to scream in short little bursts over and over again. Everything is is so big and open that he loves to hear the echos in every building we go into. It’s quite a nightmare. Jason and I find ourselves repeating the words from the ”Madagascar” penguins to them and we always have a good little chuckle, “just smile and wave boys, just smile and wave”. Its very funny.
China is growing on us, just a little bit. Today was a good day and we are continuing to adjust and are beginning to enjoy our time here. There are just a couple things that I don’t think we’ll ever truly enjoy. We’re still getting used to the “smell” of China. It’s not too bad but there are definitely little “pockets” of odor everywhere. We’ll be walking along and all is fine and them BAM it hits and it is SMELLY. The elevators are one of the worst places. We have to take an elevator every time we go in and out of the hospital. We are on the 8th floor and the elevator is rather slow. Today we were in the elevator heading down and Bradley says “Mom, (“what Bradley”)… it stinks. jason and I just giggled under our breaths because we didn’t know if anyone in the elevator understood what he said but we thought it was hilarious.
Bradley did GREAT with his treatment today. Yeah!! We were truly nervous about getting the IV in and having him sit still for that amount of time. We prayed and prayed that it’d be good and it was awesome. The nurses here are amazing. I am so impressed with how thorough and good they are at everything they do. They whipped the IV line into his foot like it was nothing. He went all morning/afternoon with it in and didn’t bother it at all. Which is truly a miracle since we all know how sensitive he is to touch and strange things on his body. Then at 5 o’clock this evening we went into a little room and they hooked up his IV bag that contained the stem cells and the NGF (nueral growth factor). It’s a yellowish color and looks a lot like urine. (there’s a visual for ya). The minute they hooked up the IV, Bradley’s eyes got sleepy and he was out the entire time. He just layed on Jason’s lap and it was a breeze. What a blessing!!!
Keep on praying… we send our love to all you at home. Till tomorrow, Chao!
(Still can’t figure out how to load the pics, the files are too big, but they are coming soon…)
Entry Filed under: severe cortical visual impairment Blog,Uncategorized
9 Comments Add your own
1. keegan | May 25th, 2009 at 11:05 pm
So glad to hear it went well! No fever, no side effects? Confirmed that he is getting neural growth factor with every treatmetn? Bradley’s such a trooper…he will take this like a champ. One down!!! Prayers are with you every step of the way!
Kerry
2. Aubree | May 26th, 2009 at 5:27 am
Yeah!! I was hoping for a post. We are thinking of you guys and glad his first treatment went well. Love ya!
3. The Kriloff's | May 26th, 2009 at 11:46 am
So great to hear about this first experience. We have been praying that he will be calm & it sounds like all is going well! Great to see you today via the computer! Technology is truely amazing!!! It doesn’t seem that you are that far away! I can hear you laughing from here!!!
Love to you all & can’t wait to hear about more of your adventures!
4. megan | May 27th, 2009 at 5:00 am
Your boys are serious rockstars. I can’t believe how tough they are, all that travelling, plus all the extra attention from strangers. We love you!!
5. Janet Davis | May 28th, 2009 at 9:13 am
Hey All—
So very good to read about your day there. Even though we talked to you on Mon. it is good to see it in writing. Please tell me more about the Neural growth factor. We continue to pray for your safety, and very best outcome possible. Youe know that you are in our thoughts and prayers every moment. We are trying to call you again tonight-or morning your time.
I had another Chemo today and so far so good still. We even got the Diamondback Special for dinner tonight so you can assure Tyler that there is still an operating Taco Bell at Higley and Brown!!
We love you are and are anxious to hear about you all–
Love, MOM
6. Janet Davis | May 28th, 2009 at 9:25 am
Daaah!! As you can tell, it just ocurred to me to check on your blog!! Sorry I haven’t kept up on it but I’m caught up now and will do better!!
Our love to you all—Love, MOM
7. AUNT SUSAN | May 28th, 2009 at 9:25 am
we’re pulling for you guys. We think of you often and
know that all will be well. With God, nothing is impossible.
What a sweet thing to be able to read your blog and hear
of your experiences. lots of love coming your way
8. Ronda&Steve Pearce | May 28th, 2009 at 10:08 am
Janet just sent us this link and its good to hear you guys are OK. Know that your in our prayers and thoughts. We will keep an eye on this site and will drop you a line once in a while. We love you, good luck!!
9. Susan Greenhalgh | May 29th, 2009 at 3:53 am
Janet sent us the link to your blog! So, here’s a good word from Utah! You’re in our prayers. Hang in there, miracles happen! Susan
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