Stem Cell Treatment #1 is complete! Don called at 5am our time to say that the treatment was done and Ella did great:) It took just about an hour and she is now sleeping.
He had some wonderful people in the stem cell room with him while Ella’s treatment was being done. He just cannot stress enough how nice everyone is. He told me about three families that he is really getting to know and it just makes me feel so good to hear this. ( Thank you for the message Debbie-Don spoke of you and your son and I am thankful you are there:) I am also thankful to the nice lady who took pictures of that first stem cell treatment-you are an angel! I had a list of things I wanted Don to take pictures of so you were there to help with that, thank you!
Don enjoyed his first pizza yesterday and he says it was good. He plans on ordering take out once a day, saves on the trips out of the hospital since they deliver it to them. He plans on taking Ella out for a walk when they can leave the hospital since they had to stay put all day yesterday since it was a Stem Cell day.
I hear that I have an avid reader of my blog and I have to say a special hello to her! Hazel, I am so happy that you are keeping up with Ella’s Journey:) Grandma Helen has posted some nice messages on our website and I really appreciate hearing from all of you! We really need to get together, I know Blake and Zoe would love to see you again! You keep those messages coming, ok?
That is all for now, thank God for those stem cells and I can’t wait to hear from Don if he starts to notice any changes…..I will be praying hard as I know many of you will.
Tanya
July 3rd, 2009
Talked to Don this morning by phone and then when the kids woke up did a Skype video call. Ella was ready to call it a day so they were off to bed when we finished talking:)
Ella had PT yesterday morning which lasted a little more than an hour. She fought them for awhile and could do the things they wanted her to do but would get tired of it and stop…..so very Ella:) They put her in a stander and she did well with Don singing to her the whole time…..didn’t ask what he sang…most of you know Don’s musical taste….something from KRNA I am sure! ha Speaking of which, I had added KRNA to Don’s faves on his laptop so him and Ella sat in the common area the other evening listening to some tunes. Don said Ella loved getting to listen to music again and they just sat side by side for awhile enjoying it.
They made it over to the Lotte Market across the street from the hospital. With Ella in her stroller and an interperter in tow they checked out all the store had to offer. Don was able to get some snack food and Pepsi and Mt. Dew which he said tastes better from the store than what was at the hospital. He is going back when he can spend some more time checking things out. Don would rather do his own thing than have someone hovering over him the whole time. He said it was funny though, all the store workers were trying to help him and trying to give him 2 for 1 deals on cleaning products:) Sounds like a paradise to me….I would LOVE 2 for 1 cleaning supplies:) Everyone was really nice he said.
They both enjoyed ice cream from the store within the hospital and he can order food to be delivered to the hospital so I think he is ready to give that a try. I gave him some suggestions that other families have reported on their blogs as being really good so hopefully he will find some faves too!
Lets see, what else…..he met the family from Seattle that I had been corresponding with. They left the morning after Don and Ella arrived so he only visited with them for a short time but they gave him the scoop and also some of their supplies that they couldn’t take back home with them….thank you Katie:)
Tomorrow is Stem Cell Treatment #1. We are very anxious, after all this is what we have been waiting for. I cannot believe the day will finally be here for our precious little Ella to get those awesome cells, thank you God!
Tanya
July 3rd, 2009
