First Signs of Improvement!
After only one stem cell treatment, the docs are saying Ella is doing fantastic and they say she is improving!!!!! WOW! Don said when the team last came in to evaluate Ella the head Neurologist said they are noticing changes in her Hypertonia ( this is what causes Ella to have tightness in her limbs). I am so excited at this noticable change that the doctors are seeing because I strongly believe if her Hypertonia is helped it can only mean bigger and better things for Ella in her ability to improve her motor skills:) Only time will tell.
She received her second dose of stem cells yesterday at 4pm and all went well again. When Don called this morning ( bedtime for them) she was resting peacefully. The only thing that the parents are all reporting on is the kids are experiancing an itching sensation when the stem cells first start flowing into the kids system and this is due to a med they put in ahead of time to open up the veins to allow the stem cells to move through better. So the first 10 minutes Ella doesn’t like it but after that she is good.
She gets her temp taken every 4 hrs. each and every day so they really want to make sure all is well. Don even gets his checked! We watched her get her temp taken yesterday while we were on Skype. Speaking of watching things…..Don took the kids and I on a tour of the hospital last night before we went to bed. It was awesome! It was daytime their of course so everything was very bright and clear. We “met” lots of the family members as they sat in the common area and said hello to everyone from the translators and nurses to the cleaning lady who was cleaning Don and Ella’s room. Blake was on a mission to meet Kyle who we have kept up with on his website but Don couldn’t hunt him down so maybe next time:) They just hooked up a Wii there so Blake thinks him and Kyle need to talk Wii for awhile:) Blake even used the Chinese word for Hello which is Ne haw ( pronounced Knee -how) and much to his suprise the lady said Hello and not Ne haw back to him, he was confused. We had a good chuckle over that!! Everyone was so sweet and it just seemed so funny to be waving and saying hello to everyone all the way in China. Ya know, one thing I just cannot figure out……how is it I can see my husband and daughter perfectly clear via Skype all the way in China from Iowa yet since this ridiculous switch over to digital tv I rarely have clear tv????? Bizzare isn’t it? Who can I talk to about this! HA
Ella will be back on her therapy schedule today. Pt, stander, massage, lunch break and stander again in the afternoon. She has not taken any naps the past few days so sleeps all night long.
I continue to hear all about the wonderful families who keep Don and Ella company when we are not chatting together. We are going to have wonderful new friends from all over, how exciting. So far Don and Ella have only gone to the Lotte Mart. Don said a lot of people have had problems with their allergies so they don’t venture out much either, others just run to the Lotte Mart and get what they need and come back so they always have someone to visit with throughout the day. I am hoping Don and Ella take a day and go to the beach, I have heard good things about it and maybe the air would be good for them. They always have someone they can travel with as far as some of the other families so maybe they will do that sometime.
Their packages should be delivered to them tonight so it will be a fiesta! Maybe all the families can get together and have a junk food feast to go along with their Budweiser:)
Tanya
5 comments July 9th, 2009
