Finally…….An Update!

September 10th, 2009

Sorry it has been so long since I last updated this blog.  With Blake and Zoe back to school, dance class starting back up for Zoe and working on various things for Ella it has been a busy time.

Ella continues to do very well and is still enjoying being in her swing outside which still amazes me each day.  She loves it and I have let her go a little bit higher in it……she loves this and giggles so hard however it scares me but I stand right in front of her to be able to intervene if needed:)  One of her favorite pastimes is sitting on the couch.  I believe her love of this stems from spending so much time with her Daddy and stem cell family on those orange sofas in China:)  It is so nice to see her sit there like such a big girl with her legs placed out in front of her so relaxed.  We were at a friends home on Sunday and she sat on their sofa and just had a wonderful time showing off all she could do.  It was great seeing her relaxed and comfortable out of her own enviroment.  She continues to work on her sitting and getting away from using those hands for support.  I encourage her with toys hoping she will eventually realize she can support herself which she has for little bits of time without using her left hand for added support.

She recently had all of her post China follow ups with all the docs in Iowa City and they were all very happy with the changes they were seeing.  Especially happy and interested was her orthopedic doctor who I just adore.  He was so happy and they came to the conclusion that Ella may not really need her AFO braces that she wears on her legs since her hypertonia has improved and she is strong on her legs without them.  We just bought new ones for her so I am still putting them on her for various activities however I like how she performs without them too:)  Her othopedic doctor has always been convinced that Ella will do well it is just a matter of time for her to put everything together.  We have also decided to start private physical therapy which we will begin next week locally.  We are excited to get started with the new therapist and see what happens.

I have been busy speaking with some other families who are thinking of making the trip to China and I really enjoy being able to help them by answering questions and sharing our experience.

That is about it for now. Thanks to those who continue to check in with us and for those who have visited us, we enjoy it!  To our stem cell family, we love hearing from each of you and yes, I owe several of you personal emails not just a blog update……you will hear from me soon:) Hope you are all doing well, we think of you each and every day:)

Tanya

Entry Filed under: onh,Uncategorized

3 Comments Add your own

  • 1. marcia  |  September 11th, 2009 at 10:26 am

    Hi
    Don,Tanya, & Family

    We are so glad to hear the Good news about Ella!!! We are still keeping you in are thoughts and prayers.

    Love
    Karl,Marcia,Derek,Spencer

  • 2. Deb Kephart  |  September 13th, 2009 at 11:38 am

    I was so excited to read a new blog and then really happy to read the continued improvements. Such a miracle your family has received!! You are all in our thoughts and prayers everyday! Love Deb Joel and all

  • 3. Phoeng Song Gip  |  September 19th, 2009 at 11:44 am

    Dear Don and Ella,
    I am so glad to hear Ella is getting better. Don, you do a great job at China taking care of Ella. I admire your strength and courage. I am so glad I get to meet you and Ella. I am still praying for Ella and your family.

    Love your friend,
    Phoeng and Michell from California

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