Joseph’s Friedreich’s Ataxia Blog

Update on X-Ray

2-27-09

HALLELUJAH!!!!!!! The doctors did an x-ray to try and figure out why Joey was having so much pain in his hips & tailbone. The x-ray showed that he has a malformation that causes him pain if he lays on his back for too long. After each SCT they have him lay flat on his back for 6 hours…..Thank goodness it isn’t caused by the stem cells. I am soooo relieved!!!! Now they will allow him to lay on his side after each SCT and treat him for the bone problem. Accupuncture would not help his situation so he won’t be getting that done. 

We may have to postpone our little outing this weekend until Joey is feeling better but at least everyone is aware of the problem now and he can concentrate on getting stronger. I know we both feel much better knowing the problem is not with the stem cells.

dana

4 comments February 27th, 2009

Friday

2-27-09

This morning about 5:30 a.m. Joey started having alot of pain in his hips and tailbone. It kept getting worse. He had to wait for the doctors to come in at 9:00. They all piled in our room to examine Joey and ask questions about the pain he was feeling. They have decided to do an x-ray to see if there is any malformation from sitting in his wheelchair for so long. According the the doctors, he should not be going through any pain right now. Accupuncture may be an option again. No PT or OT today.

more later…

Add comment February 27th, 2009