Joseph’s Friedreich’s Ataxia Blog

The Count Down Is On…..

March 17th, 2009

3-17-09

HAPPY ST. PATRICK’S DAY EVERYBODY & TOP O’ THE MORNIN TO YA!!!!

Joey and I slept a little bit better last night. We were both pretty tired. We got up and like always went to PT. Joey has been having a few problems with his left knee lately so he won’t get to do the standing table until it is better.

The doctors came in this morning to discuss the next step….we still do not know when the last SCT is going to be. Joey may end up having to do another lumbar puncture instead of the IV SCT. It depends on if they can get enough stem cells (for an IV) before we have to leave. Joey and I feel that it is important to get the last one over with several days before we have to get on a plane to come home. I don’t want him in pain during that 19 hour flight.

The count down is on. Only 15 more days until we get to go home. And it will be soooo nice to go home. Joey will have to continue exercizing and building his muscles so that the stem cells can continue to grow. I will arrange for more Physical Therapy on a continuous basis. Also, Rick has been working hard to turn our garage into a gym for Joey while we’ve been away. It is going to be great.

It may not happen before we come home but we still have an unshaken belief that Joey will walk again before this is all over so keep the prayers coming.

much love to all….

Entry Filed under: ataxia,Uncategorized