Joshua’s SOD Blog

Day 12 – Monday 11th May 2009 – Pupil Dilation Confirmed

May 11th, 2009

Josh woke up crying hourly last night, which was tough especially as he didn’t go to sleep until well after midnight. He woke up at 8am, and was fairly happy, despite a disturbed night.

Linda came into our room at 8:45 am placed the electrical wave pads on Josh’s legs initially, and fortuantely he didn’t give up too much of a struggle, especially being that he hasn’t had them for three days. He is kept entertained by his nursery rhymes, which he sung along to.

Shortly after his electrical wave therapy, Dr Hong and her colleagues visited us on their rounds. They closed the curtains and examined Josh with a pen light. They confirmed what mum and I had seen, that the pupils are dilating, and working together. The doctors did have difficulty in examining him as he was jiggling about to his music, and Dr Hong said that she thinks he’s a musician in the making! I am so pleased that they have confirmed what we had thought, and for these improvements to have so early in the treatment which is really positive. I hope that we see similar improvements on his next treatments, but I’ve also got to be realistic and not hope for too much.

Josh had standing session next, which was slightly better than last week. Linda adjusted the straps so that Josh was only being supported by one leg strap, with the other leg bent and on a step. Josh seemed to like this better, and it also worked on his balance.

We had a short walk to the RT Mart again after lunch, but it felt even hotter today than the last couple of days. We would’ve liked to have gone as far as the park again, but the heat was unbareable.

Unfortunately Josh didn’t have his afternoon nap, and we had reservations about his physio session, but Josh began very well. Linda massaged his arms and legs, and then started practicing rolling over on his side. Ant put his mobile phone songs on as an incentive to get him across the table, which worked well!! He seemed to be rolling far better than before, and Linda was really happy with him. He then showed off his dancing skills to everyone in the physio room, and had a crowd of physiotherapists, parents, children and nurses around him watching him dance, clap and sing to Akon featuring Colby “Beautiful”! What a little performer! After tiring himself out with his dancing, he struggled with the swiss ball exercises.

Mum and Ant cooked us an evening meal of Spaghetti Bolognese, and homemade garlic bread, which was really very tasty. There are two kitchens on this floor, one small one for cooking, and a second for storing kitchen equipment and food. They struggled at first with their electric hot plates, as they are not like what we’re used to back home. The socket on one of the hot plates started sparking at one point, but they soon worked round it. We had been a bit concerned about picking the mince in the supermarket, as they didn’t look like the ones at home. In the end we managed to find  a sealed pack, but they also sold it loose, which you use a scoop and put it in a carrier bag (didnt fancy the look of that), but it turned out to be very tasty, well done mum and Ant.

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