Joshua’s SOD Blog

Day 37 – Friday 5th June 2009 – Stem Cell Treatment Number 8 – Last One!!

June 5th, 2009

Despite Josh having a very good night’s sleep, he’s been very sleepy all morning and afternoon. He was woken up earlier, and was given his milk and breakfast before his food and drink cut off time. He was very good again for his last electrical wave therapy and standing sessions – so so much better than the beginning!!

We didn’t seem to be able to amuse Josh for very long this morning, he was tired, but wouldn’t go to sleep and wouldn’t play with his toys for very long either – it was a long wait for his treatment!

Nurses Amy, Kitty and Joan came in at 2:45pm to place the IV line in Josh’s hand, which was done really easily and quickly by Joan. Josh cried for a while, but soon stopped when Nurse Casey came in and played him his favourite Chinese song, which he sobbed to.

Josh was taken down to theatre and was put to sleep before the spinal treatment. We returned to the room, and waited for Josh to come back from theatre. After about 20 minutes, Lucy the patient co-ordinator came into our room without Josh. We obviously jumped to our feet, concerned that something had happend. Lucy explained that Josh was fine and that the procedure had gone well, but that when he had been woken up, and was screaming the place down!! She asked if we had a dummy or something to soothe him, but unfortunately for us, Josh stopped taking his dummy months ago. Lucy was given some toys for him, and she returned down to theatre. Within around 5 minutes, Josh returned, still crying… His voice was now croaky and mouth dry from all of the crying. He was given valium,  was comforted us, and finally went back to sleep. He slept for a good 2 hours, which is what he really needed. He woke up in a much better mood, and was soon back to playing and singing. He was then allowed some food aswell, and because he was on back, we were only able to give him Quavers and Chocolate as they both melted in his mouth. The next 4 hours passed very quickly, and Josh was as good as gold.

At 10:15pm, his 6 hours was over and he sat up and was finally given his milk and some food. He has since been playing with his toys happily. We’ve got a day off tomorrow, but won’t be able to leave the hospital until his IV line is removed.

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