June 5th, 2009
Kyle has had a very busy day he started off with having six viles of blood drawn this morning along with physical therapy and his first session of accuputure, needless to say he’s not the biggest fan of needles. We were able to get out for a short time this afternoon and go to Lotte Mart also know as a Wal-mart on steroids. This afternoon he had more physical therapy and his first session of electric-wave therapy, which he thought was very cool he actually asked if his legs were moving. The nurse just came in a while ago to tell us they have a match, and Kyle will recieve his first injection at 4:13pm on Friday, which is Thursday and 3:13 your time. Because I dont have my e-mail address on this site and you would like to send a personal e-mail that I can respond to you can do so at asknopes@yahoo.com. I will right again soon and thank you for all the support and prayers.
Entry Filed under: sma,Uncategorized
12 Comments Add your own
1. ROB VW | June 5th, 2009 at 4:31 am
GOOD LUCK MAN! I will see you when I come home!
2. Paige | June 5th, 2009 at 4:43 am
I was reading Brandon’s blog the other day and it sounded like the electronic wave therapy was really cool and effective. So you are a full day ahead then, how strange! Sounds like you are going to be busy little beavers so hopefully the time will go fast. Keep updating, it always makes my day that much better when I hear from you guys.
Paige
P.S. Tell Kyle I have been packed for Camp since Monday night! That’s how bored and excited I am! I plan on carrying out any and all pranks in his honor!!!
3. auntie kim | June 5th, 2009 at 5:27 am
Wow! I just logged on and realized you had your first injection 1 hr ago! It’s really happening! Joey has his friend over. Alex, Ann’s son. We are all going to baseaball practise together. Nothing else new. I’ll stop and check on Steve this weekend. How many hrs at a time are you at the hospital? Any good food yet? I know it’s early but I want to know if the Chinese food is better there, or here.
Kimmy
4. Morgan | June 5th, 2009 at 5:56 am
Sounds like things are moving right along, thats so wonderful! Thanks for keeping us all updated over here! I hope its a comfortable stay over there! I love the comment on Wal-mart on steriods! HAHA your so funny! Talk to you again soon!
Morgan
5. Roxane Espland | June 5th, 2009 at 6:09 am
I am glad to hear everything is on schedule from the get go.
I think of all of you often during the day. Sure do miss you all!
Love Rox
6. Sam | June 5th, 2009 at 6:39 am
Ahh kyle! i miss you i hope everything is going well! cant wait to see you again!! =]
7. Ann Krueger | June 5th, 2009 at 8:09 am
I am so thrilled that there was a match so quickly. We are so happy for you Kyle! Alex talks about you all the time and wonders how you are doing. I will tell him to email you to the account asknopes. Love, thoughts and prayers are with you all Penny, Andrew and Kyle!
8. Uncle Tom | June 5th, 2009 at 9:06 am
Glad there were no problems. James says he is around if you need him. Heard yesterday from the Chinese friend from work who gave me the web links that there is no drinking age and he had his first at age 4. whats up with that Andrew. He says you can go and get your mom a drink about now well ok in 20 hours from now. Its 9 pm Syracuse time so it should be 9 am Friday their. Were thinking about you guys. As Jeni said take pictures even at the semi clothed beach. Tom
9. Runnings | June 5th, 2009 at 9:09 am
Hi guys, glad to hear you made it safe and sound. Hope Kyle’s 1st injection went well. It sounds like your pretty busy; please try to get some down time and enjoy the sites. Miss you guys. Talk at you soon.
10. Rick Gyr | June 5th, 2009 at 11:37 am
Kyle’s getting right down to business! I hadn’t realized there would be such a mix of complimentary medicine. Take good notes Andrew – you’ll get a few papers done for next semester! — I’m thinking Kyle’s first injection will be 3:13 am Friday our time. I’ll double up on the prayers before sleep tonight! (10:45PM Thurs here) Thanks for keeping us posted. I’m like Kim – I can’t keep my mind off of you guys. All the best to each of you. Love – Rick
11. Jeanne Appleton | June 6th, 2009 at 12:25 am
Hi Kyle and Penny,
I read your info and am excited that they got right down to business. That tells me that they have a really systematic approach in place…no messing around. I don’t know what electric wave is but if you thought your legs were moving then it must be pretty cool. Let me know what that is like ok? I am sure you will find a way to deal with the injections if it means good stuff ahead. Prayers and peace, Jeanne
12. SHELLEY S. | June 16th, 2009 at 4:40 am
Hello everyone!!!
We are all so happy for you!! Hey remember your friends at Dean when you are out bargain shopping!!! Would like me to send you our lists??? Anyways, we are all so proud of Kyle. Keep up the hard work. We miss you at work Penny. It is not the same.
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