Continued…

June 16th, 2009

Right after I posted my last blog I went to P.T. and while I was laying on my back I straightened my right arm unasissted!  Also my mouth is opening more and my jaw has yet to get tired even when eating beef jerkey and pizza.  When I had electric wave therapy my hand was twitching because the power was up higher than normal.  Also on our way to the dining room I carried the apple juice instead of just the paper cups because I was feeling strong.  It has been a great day and I feel better and stronger than I have in a really long time.  Prince Fielder hitting his first grand slam helps also.  Thanks for reading and we cant wait to read all of your wonderful comments every morning.

Entry Filed under: sma,Uncategorized

19 Comments Add your own

  • 1. Shelly & Justyn  |  June 16th, 2009 at 8:56 pm

    Im AWAKE now! Kyle, this is so great! I still cant believe how quickly things are progressing. It seems as though theres some kind of improvement with muscle strengthening everyday. Keep up the good work. We are so excited. And we’ll keep saying lots of prayers!!!!! Love you guys!

  • 2. Paige  |  June 16th, 2009 at 9:28 pm

    KYLE!!!!! I am so mad I missed your calls. I was in the shower and my phone was still on vibrate and under my pillow!! I started a new babysitting job yesterday that seems like it willl be a good filler before camp #2. If you get a chance, call me back, I would love to hear from you. and I will be more on the ready now, I was expecting late night calls not early morning!!! I hope the rest of your week goes well.

    Paige

  • 3. Murphys  |  June 16th, 2009 at 10:01 pm

    Awesome,awesome,awesome!! So happy to hear your great news everyday. We miss you guys and love reading your posts. XO

  • 4. kelly kress  |  June 16th, 2009 at 10:09 pm

    Hi Kyle,
    Awesome news! It will be great seeing you in action when you get to come home. Yeah, the Fielder grand slam was pretty cool…to HEAR about! I was watching Taylor play baseball and knew the Brewers were down 12-7 so I just paid more attention to Tays game than the Brewers. I get home, walk in the doo,r and was like… What the heck happened!? Got to see the last inning. I didn’t even think about putting it on the radio. Oh, well, at least they won!
    Kelly

  • 5. Jeannette M. Pryor  |  June 16th, 2009 at 10:13 pm

    KYLE THAT IS EXCELLENT! I was sleeping when you called, u know my second day of summer vacation, I have alot of catching up to do. I will also be more aware in the early am hours. Please dont stop trying. I LOVE the note to Mullen, I am sure he will get a huge kick out of that. I do know that ALOT of people are reading your blog, although they might not be commenting. I run into people and they let me know. I updated Mr. D at Mr. O’Leary’s retirement party. He got choked up! I am sure that he won’t mind me sharing that with the WORLD! KEEP UP THE GOOD WORK! You are in my thoughts and prayers-CONSTANTLY! Please give Penny and Andrew a big hug for me, as I am sure they are working very hard.

    Love ya,

    Jeannette

  • 6. auntie kim  |  June 16th, 2009 at 10:26 pm

    Don’t stop amazing me! Just got off the phone with Granny. She was so excited as are we all. I know you are working very hard. Keep up the good work. Pretty quiet around here. We got our pool up yesterday. Alex was over and the boys went swimming. The water was 60 degrees! Crazy kids. Ann got me hooked up with a template for dental Asst so I am working on my resume again. Who knows, maybe I’ll even get a job! Two baseball games this week and Joey has started Sylvan 2 times a week starting today. Not complaining yet.

    All my love, Kimmy

  • 7. Sharon  |  June 16th, 2009 at 10:36 pm

    Kyle, we are all so happy for you. I can’t tell you how glad I am to hear how much this is helping you. I just was interrupted by the phone, it was Heather, Brandon’s mom, I was telling her how great things are going for you and I couldn’t finish because I started crying. Look at all that you’ve gained and I know Brandon would be in a wheelchair all the time now if we had not gone to Qingdao. By the way, Brandon graduated from preschool and he walked all the way down the aisle with his walker. Of course, I cried because I know that would not have been possible before the treatments. Anyway, Kyle congratulations and we think about you everyday.

    Sharon

  • 8. Hilbelink  |  June 16th, 2009 at 11:35 pm

    I have known that stem cells can do amazing things, but it is totally different to know someone who is experiencing the miracle. Kyle, I am so happy to hear how things are improving for you.

    However, I am concerned about your mouth not getting tired. Does this mean you are going to talk even more now? :)

    By the way, everytime I see Starbucks, I think of you.

    Best wishes!

  • 9. SHIRLEY ZIRBEL  |  June 17th, 2009 at 12:55 am

    Hi Kyle I am so sorry that i missed your call my cell was downstairs!! It is so awesome about all the progress with your arm,neck and jaw… Just like your teacher said does that mean you will talk even more?? I have had great news myself lately. Yes I am going to be a grandma again!!! Stacy and Zach are so happy. They think it happened in Vegas!!! Tell your mom and Andrew Hello for all of us….By the way how is your Dad doing? Can’t wait to hear from you again. With news that great though you better call the house phone. We do not care how early it is!!!!! take care love Shirley

  • 10. Michelle Jorgenson  |  June 17th, 2009 at 1:09 am

    HI Guys! I am back from Vegas, and finally got to catch up with your blog. All of the improvements are amazing! I forwarded the link to your blog to my co-worker. Her husband has MS, and I saw a couple of other blogs on the side from people with MS talking about their results. Jeremy survived his 4 days without me. He even cleaned the house, did some laundry and cleaned the carpet in the bedroom. I was very impressed. The new dog drools everywhere, so there is a lot more cleaning required. I can’t wait to read your next entry. It is so exciting to hear about all of the improvements, and we can’t wait to see you guys.

    Love Jeremy & Michelle

  • 11. Jim Humphrey  |  June 17th, 2009 at 1:17 am

    That is great Kyle!! Best wishes for your treatment and remember to take in as much of the culture as you can. Ask your Mom if it’s ok if I have a pool party at your house while you’re away…….lol

  • 12. Jason Knopes  |  June 17th, 2009 at 5:21 am

    I just don’t know what to say. It is wonderful to hear how things are improving and I was happy to find out about the 8th injection. Grampa told me today. Keep the updates coming and enjoy yourself as much as possible.
    I think traveling, meeting new people, and learning about other cultures is the best way to learn more about yourself and who you are. It gives you another perspective and opens up your mind.
    I saw Prince’s grandslam. They were down 12-9 and it put them up 13-12. What a game. Juni and I were watching it together and couldn’t believe it. What a great moment for his first grandslam. Hopefully yesterday helped them break out of the offensive slump they have been going through. They are still in first, but barely.

  • 13. Tracy  |  June 17th, 2009 at 7:33 am

    YAY for Kyle!! You are awesome!!! Sounds like things are outstanding and just keep getting better!! Can’t wait to read more! Hi to your mom and Andrew too. Saying more prayers for you every day!! Love you guys!
    P.S. let me know if there is a pool party goin’ on at your house, maybe I should supervise…LOL

  • 14. Katrina Knopes  |  June 17th, 2009 at 7:52 am

    Kyle that’s so great to hear all of this. I’m so glad you’re finally getting the independence that you have so long wished for. Even if it is a little bit. Tell everyone that I say hi and miss them. Can’t wait to see you when you get back. Have fun the rest of your time in China.

    Love you all

  • 15. Emilie  |  June 17th, 2009 at 8:08 am

    Kyle this is so exicting! I copied your blog url to all the ladies in Cedar and they are all amazed and overjoyed! Isn’t it amazing that even though are you thousands of miles away, you are still bringing smiles to hundreds and hundreds of people back at home!? Keep it up kiddo and we can’t wait for more updates!!

  • 16. Cristal  |  June 17th, 2009 at 9:19 am

    Hi Guys. What incredible news Kyle. This is so amazing. We are all so excited and impressed with the treatments and the progress you are making. I’m sure more good things are yet to come. Penny you must be overwhelmed with all this. We are praying for you guys and miss you. Can’t wait till you get home.

    Love

    Cristal

  • 17. Stacy Jo Steurer  |  June 17th, 2009 at 12:01 pm

    Yay Kyle…I am so happy…everytime I read these I cry…I am emotional lately…more then usual…I miss you kiddo but I love love love all the good news…you will be a whole different young man when you get home…enjoy all the freedom….love you and take care…say hi to your mom and andrew for me….love Stacy Jo

  • 18. Charmone and Ana  |  June 19th, 2009 at 2:46 am

    Hey guys we miss u so much and are excited to here that kyle is doing so well, we can’t wait till you guys come home to see you eveything going good here except for storms. We love you, kyle keep doing good and will here from you soon

  • 19. Paula McGuire  |  June 19th, 2009 at 7:56 am

    You kick ass. I am so proud of you. I can’t wait to see you and your improvement when you get back–let’s plan a dinner at Olive Garden–you know, to celebrate your BIRTHDAY! This is my busy time at work, but reading your blogs adds some happiness to an otherwise busy and unpleasant time!

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