Change of Plans
June 17th, 2009
It’s Kyle and today wasn’t the greatest day. Acu-puncture was a disaster and I never want to do it again, but I know that it may be part of all my success so far. It started when Tom, my therapist, put the needle to far into my right arm. Eventually he had to remove it because the pain was to much. Then, when my mom was talking to one of the other families, she decided to move my leg with four needles in it without even thinking about it. After our morning was over, we had nothing to do. Then my mom asked Tom for a massage, which she said was awesome. Next, when we were eating diner, one of the student doctors came in and told us that I will be having my fourth injection tomorrow rather than Friday because they are getting the stem cells from another city. Just geting ready for bed now. Good morning!
Entry Filed under: sma,Uncategorized
16 Comments Add your own
1. Murphys | June 17th, 2009 at 8:22 pm
Kyle, so sorry about your difficult day. I hope today is better for you. You are amazingly strong, I am in awe of you every day. Keep your chin up! We miss you here. XO Thea
2. kelly kress | June 17th, 2009 at 8:49 pm
Good morning (here),
Sorry to hear about your mishaps. Hopefully there will be no more. Keep smiling!
Kelly
3. Shelly & Justyn | June 17th, 2009 at 9:37 pm
Good morning, well here anyway. We were so disappointed we missed your call!! I was sleeping. Had to Justyn a Starbucks, Thanks! Remember we talked about that acupuncture? It can be very painful. Im sorry you had to go through that. Paige and Matt stopped over yesterday too. Wanted us to go to a movie with them, but Justyn had a game and they came to that afterwards. They’re on a winning streak and he’s making play after play, doing awesome. We’re gonna get together Paige before she leaves.
Seen your Dad yesterday, Kelley stopped by to get fish. Hang in there honey, got another day ahead. We miss and love you! Im off again on Thurs. HINT
4. Abbey | June 17th, 2009 at 10:34 pm
Awww Kyle im sorry to hear that, I am so proud of you for not giving up because if I was you I probably would. I would be crying because I hate needles. Your progress just amazes me, but i think im psychic because from before you left I have had amazing dreams of what is to come!!
I love and miss you all so much
Abbey
5. Don and Karen | June 17th, 2009 at 10:36 pm
Sorry to hear about the pain you went thru, Kyle. I get up every morning and read your blog then tell Don about it when he gets off of work. Don started umpiring for girls softball at Dawson field. He loves it!!! We all miss you and pray for you everyday. Keep your chin up, it will be over before you know it. Love Don and Karen
6. Rick Gyr | June 17th, 2009 at 10:53 pm
Hey Kyle, et.al.,
Doesn’t sound like such a magic day… Sorry to hear that. Earlier your mom mentioned that you didn’t really like needles – hope the the experience wasn’t so bad that you let the negative energy rule. Acupunture is all about gettin’ your Chi in order, right? We’re all sending and surrounding you with positive energy, love and care. Hang in there on those frustrating days! – All the best to each of you. Rick
7. Kelley | June 18th, 2009 at 1:27 am
Hey there you guys. Did you get my e-mail yesterday. I was soooo bummed I missed your call yesterday morning. Kyle, I saw your dad after work yesterday and he told me about the extra injection you’ll be receiving. That is awesome. You sounded great and it’s seems things are going well. I am so happy and excited for you. You guys are always in my thoughts and prayers. Keep up the good work and I can’t wait to see you guys.
Love ya!!
8. auntie kim | June 18th, 2009 at 2:25 am
Hi Kyle Andrew and Penny.
Just read the blog. Sorry you had such a bad day! You know that sayting “Going to my happy place?”..That is what you should try. It’s kinda meditating. Stay strong. You can do anything and I know you know that. I hope Penny and Andrew are doing well. Love all the pictures. I put the pictures from your friends on facebook. Everyone loves them and thanks me for putting them on. Going out to cut the grass. Supposed to rain through the weekend. Great huh? There is a surprise coming so watch the blog carefully. Love to you all.
Auntie Kim and Joey
9. Granny | June 18th, 2009 at 6:08 am
HI Guy`s
Guess who.It`s Granny.Kyle I`m sorry you had such a bad day.
We miss you guys alot and we say a hundred prayers a day.
Nothing much is going on with us but Grandpa is going on the
Tub Run on Sat. We are going to take your Dad and Grandpa out
to eat for Father`s Day. We don`t know where yet.
Well I`m going to make supper now,I`ll write again tomorrow
now that I kmow how. Love you alot
10. Mike Kuehne | June 18th, 2009 at 8:48 pm
Kyle,
I think you’re showing true courage working so hard at getting better. It is great to hear the news about moving your arm and
the progress with body control. I’m sorry you’re having to endure
other pain, but can’t wait to see you in the fall.
Keep up the good work!!
Mike Kuehne
11. Shay Factor | June 19th, 2009 at 12:39 am
Hi Kyle
Just wanted to let you know we will be following you on your trip and progress!! My daughter Sierra Journey Factor will be heading over there Aug 28 th and she starts her treatment on Sept 1 she has SMA type 2 and we are all very excited! I am so sorry to hear about your day! Tomorrow will be better! Our thoughts and Prayers will be with you every second!
12. deanne eccles-rotar | June 19th, 2009 at 12:56 am
Kyle and all,
that is too bad about the acupuncture; I had it done before and if I tried to move my leg or foot with the needles in it I did get a sudden reminder not to do that!
Anyway I hope it gets better after the next injection!
deanne, george and will
13. Michelle | June 19th, 2009 at 1:14 am
Hey guys! It was so great to get a call from you the other day! I’m just amazed at all you can do already! Just goes to show that miracles do happen!!! Joel and I are thinking about you everyday and my family is so excited for you! We are all hoping and praying that this awesome-ness continues!
Camp was good, no real pranks though. I had to plunge the toilet, again, this year. It’s becoming a ritual.
I should be able to close next week on my house, no date for sure. Joel is beyond excited! Looking forward to my hammock with cabana boy from your dad!
Love you guys!
Michelle and Joel
14. Sandi Jacobs | June 19th, 2009 at 5:38 am
Hi Kyle!!
I am catching up on you this week – WOW! Sounds like things are going great!! Your right arm…. I can’t wait to see you and all the changes! As far as the accupuncture – I know you, and I know you wll suck it up buttercup, right?
Your a tough one!
I’m cleanning now for this graduation party we’re having Saturday – I can’t believe my husband and I are’nt dead from all the dust we;ve been living in!?!! ha ha Hopefully it won’t rain. They’ve been calling for it all week but hasn’t, not supposed to on Saturday and probably will!
Kyle, you take care, I’m praying for you and thinking about you!!
Love ya,
Sandi
15. Barb D | June 19th, 2009 at 9:14 am
Penny, Kyle, and Andrew,
Hope you all are surviving OK. I had acupuncture a couple of times. Kind of freaky! I had it the two times that I had shingles (not a lot of fun, but made acupuncture seem tolerable). One of the needles was placed in the back of my head; but at least I couldn’t see that one! You are really being a trooper! I suppose it helps that you really strongly wanted to do this and so you have to try to embrace every kind of therapy that they think will help. Penny, three weeks down! Dr. Eccles is being a trooper! You know how it is, never know who will be working for her on any given day. Mary’s birthday tomorrow; so chocolate cake! Think of you often (every time I have to fumble to schedule an epidural!) Can’t wait to hear more exciting news!
Barb Downing
16. Tammy | June 19th, 2009 at 11:14 am
HI Kyle, Andrew & Penny, sorry to hear you had a bad day. I guess this is going to happen, we hope that they are far and few between. We miss you all and cannot wait until you get home. Andrew are you taking care of your MOM? Rachel is finally rolling over, but she still hates being on her stomach. She has realized that she has a voice, I think she screams just to hear herself. Well it’s time for bed, hope you all have a good day.
Love all of you Tammy & Tom
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