Rolling, Rolling, Rolling…
June 23rd, 2009
Today was a busy day again. We didn’t sleep at all last night (bad food). I still had theropy bright and early however. Today after my normal stretching my theropist decided to have me roll about 10 times to each side in order to work my back muscles and improve my posture. It was difficult the first time, but a breeze after that. Then after a.m. P.T. we took a new family from El Paso to the Loti Mart accross the street and had lunch and an awesome coffee (I am going again in a few hours with a different family). There are 2 new families comming tonight and 5 within the next week. From what we have heard 1 has SMA. Tomorrow is my 5th injection and I can’t wait! Love you all and ta ta for now.
Entry Filed under: sma,Uncategorized
8 Comments Add your own
1. Rick Gyr | June 23rd, 2009 at 9:00 pm
Bad food? Were you all sick? (Don’t bring that recipe home with you.) — No rest for the weary I guess. But it must be cool to experience the concrete progress. You inspire me to do a sit up (I’m a total slug in the heat! 93 today w/100% humidity) — It sounds like quiet a supportive community you have over there. And you’ve become the veteran to show folks the ropes. What a gift to make friends from all over the world. Maybe you should consider international law or public policy for college. You could visit and study all over the world (though I’m guessing JVL WI is the only place you wanna be right now.) Keep up the good work. Its is edifying to hear what you have accomplished. I’m sharing the news with the Sisters and groups we have praying for you. Blessing to each of you. – love Rick
2. Paige | June 23rd, 2009 at 9:25 pm
Hey Kyle. I thought I would fill you in on all the Hollywood Drama going on here. Chris Brown and Rhiana went to court yesterday. He was ordered 5 years probation and they are both court ordered to stay away from each other. John and Kate are no longer! They officially announced last night that they are getting a divorce! Ed McMahon died today, he was an announcer at the telethon. That’s about it for celebrity news, I know how much you love it
. It’s going to be a hot one today! Have a great day
3. Morgan | June 23rd, 2009 at 10:40 pm
Hi Knopes Family- I thought of all of you this weekend when I heard the MDA tub run go past my house!!! Hope Steve got a chance to get out there it was a beautiful day! Kyle you are going to be high on coffee your whole trip over there aren’t you?? Sounds like all is good, and the count down to come home begins! Have a good day over there! Miss you all!
Morgan
4. Peggy Cockerham | June 24th, 2009 at 2:49 am
I have a grandchild named Rayanna Seffens. I know she got on the plane but I do not know if they have made it to the hospital. If you get to see her please let me know that they made it. Glad to here of your progress.
5. BradleyD | June 24th, 2009 at 5:52 am
Kyle! I’m so glad that we found your blog. That is so awesome about you rolling over. I wish we could’ve been on the table next to you doing therapy so we could’ve seen it! Well, kind of, its good to be home. Sorry you all got sick. So you guys are the “old timers’ around there and taking everyone to Lotte Mart. How does that feel? It just means you’re that much closer to going home! Keep in touch, we will keep checking your blog and can’t wait to hear more. Bradley has asked for you, Andrew, and Penny since we’ve been home. I think he secretly misses China but too bad, we’re not going back anytime soon. Tell your family hello and all that are still there. Best of luck Kyle!!
Evonne Davis
6. Jeannette M. Pryor | June 24th, 2009 at 7:59 am
“EXCELLENT!” I know you can just hear me saying that Kyle.Get a good nites sleep!
Love & Miss ya!
7. Jeannette M. Pryor | June 24th, 2009 at 8:01 am
I hope you are still drinking DECAF!
8. Ann Krueger | June 24th, 2009 at 7:20 pm
I am thinking that maybe you have a future job over there as Social Coordinator. That must be so much fun meeting new friends and family. HOT HOT HOT here but it is summer, woo hoo! Enjoy your day and good luck on your 5th injection. Ann
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