Archive for July, 2009
Hi everybody! This weekeend was great. On Saturday, we went to the Buddhist Temple, which was something I had been looking forward to. We went to all the different shrines and offered incense, along with a prayer. It was very interesting to see the customs of the worshippers. We went to the gift shop and the people were very nice and allowed me to touch all the stuff. It was raining and so I was not able to see as much as I would have liked with the sunlight. However, the colors and light were much more vivid to me. I could tell my mom and Emani everytime I saw red; it is all over the temples. My sister even got to ring a bell in a bell tower – it is an experience I will never forget. After this, we went to Pizza Hut, which in China is something of a fine dining experience. I got the chicken curry pizza and there are many other dishes equally interesting. Next on our day was Jimo, a Chinese baragining market, which is similar to the “mercado” in Juarez. We were able to see roasted beetles on a stick, which I did not try. Emani tried squid on a stick and liked it; she was much braver than me. It was an exotic experience to see the things we see on our favorite travel channel shows. Itt was drizzling and cloudy all day, so I couldn’t test my vision results much.
Today, we got up and took it easy. We went to RT Mart for our grocery shopping. We must go every 4 days, because there is not enough space in which to store ample amount of groceries. Today was sunny and I was able to see the ”brighter world” again. I could see the crosswalks (white lines) from the window of our moving taxi. I have always been able to see the lines, but not in a moving vehicle. The red lettering on the hospital was also visible to me. I cannot tell the shapes of the letters, but I could point to the red. After leaving the groceries in our room, we went to eat at a brand new KFC across the street and walked passed the same flowers I had seen. Of course, my mom keeps giving me vision tests. So, we stopped where the flowers were and I stepped back 2 yards and was still able to see that they were red. The closer I was, I could see that the red was not all one mass.
Then, Jack my favorite translator, took me to a small music school that his friend owns. It was cool; I hadn’t been on a drum set since we left. I got some practice and the musicians were very friendly towards me and asked me all sorts of questions.
This was our weekend. I will have IV treatment tomorrow and spinal on Friday of this week. Thanks for reading and let’s keep praying.
July 12th, 2009
Today is Friday. The doctors came in again today. The head doctor along with 5 others came with Dr. Tony and were very excited by Dr. Tony’s report. Yesterday afternoon, we walked across the street to LotteMart and on the way, I was able to tell that the flowers on my left hand side were red. The world seems a shade brighter than before. The doctors encouraged me to go out and to look at things to see what I can see. I have the next 2 days off, and plan to use them to sightsee. I will keep you informed. Again, thanks for reading and all your prayers.
July 10th, 2009
Hi, it’s Lawrence. I woke up feeling great this morning. Emani helped take very good care of me. I don’t know what I would do without her. I’ve had no headache and no backache and I was also informed today that my vision is improving slightly. Dr. Tony sees that my nystagmus is lessening. Today, I was able to see a candy wrapper on the floor. This is really exciting news and after this it will only get better. Thank you all for your prayers and please continue to pray for us.
July 9th, 2009
Hi! It’s Georgina. Lawrence did very well with his 2nd spinal. He prayed before the procedure, let the valium work and let the doctors get in on the first try. He went into the procedure room at 4:00 and was out at 4:20. He was much more relaxed afterwards and not as grumpy! Yeah! His sister has been helping me take care of him and watched over him, while I went to the community kitchen to fix her and I dinner. She has been such a good helper on this trip. I don’t know what I would do without her. Lawrence will be able to have something to drink in the next hour. Then, something to eat at 8:30 p.m. and get up at 10:30 p.m. We are half way through the treatments, I can’t believe it. 2 more IV’s and2 more spinals. God opened this door for us and everything has just fallen into place. We are now watching Hairspray with our new friend Nena from Switzerland. She has ONH also. Thanks to everyone for their prayers, they are working. We also read all the comments and we are so blessed to have so many people taking the time to read our blog and leave comments. We enjoy reading your comments.
July 8th, 2009
Hi! It’s us again. We haven’t blogged much, since there hasn’t been much going on except for accupuncture and electric wave therapy for Monday and today. We got our schedule for tomorrow’s spinal, it will be 4 p.m. Lawrence has decided he will try to relax more and let the valium work, Please keep him in your thoughts and prayers at around this time, so that it can go well. We will fill you in tomorrow.
July 7th, 2009
Today is Sunday afternoon. Yesterday, we had a day of therapy and then had some cake and ice cream that Debbie ordered for us to celebrate the 4th of July. It was weird to be in China for this day. We called it an early night and went to bed, since we had a big day at the zoo, botanical gardens and lunch today. Penny got us a large bus and we headed to the zoo, it was so crowded that we had to go to botanical gardens first. This was basically a large park with a few rides. Lawrence and Emani enjoyed themselves. Then we went to the zoo, which was different, we saw lots of animals, but no pandas. And of course, we got lost, with 2 other families. The language barrier is so hard, we asked for the exit (basically hand signals and saying ”bye,bye”) and they led us tothe wrong exit. So we had to find our way to the monkey hill to get back to where the bus was. That was adventurous! Then we ate at Napoli, an Italian restaurant, which was nice. We just got back to the hospital to be ready for another week. This week will be hard for us as 4 families are leaving back to their homes. Lawrence will have his spinal on Wednesday. Please help us pray that the pain is less this week.
July 5th, 2009
Hi! It’s me Lawrence. I had my 3rd treatment today by IV. IV’s are really easy and afterwards you feel very energetic. It’s kind of weird, but after the IV treatments, I feel famished. I didn’t get any therapy today, so my mom, my sister and I, along with some other families went to the Holiday Inn. After that, we came back and had a lunch of stir fry and noodles. After lunch they stuck me with an IV and got me ready for treatment. The doctors came today and told me the results of my eye test. Basically, my optic nerves are very thin, which we already knew. They will do another eye test at the end of the treatments, to see if there are any improvements. No eye itching todday, but let’s hope for the best. We pray every night that these stem cells will work. Thanks for reading!
July 3rd, 2009
Our day was great. Therapy as usual. Went to Lotte Mart to buy some more groceries. Said “goodbye” to 2 families that left . One little girl has ONH like Lawrence and her nystagmus has calmed down a lot. Nystagmus (his eyes move around a lot uncontrolled). We exchanged email addresses to keep informed of each other’s progress. I took the kids to swim. We’ve heard that exercise is great to stimulate the stem cells. Lawrence got a slight headache, but did great. At dinner, he said his eyes itched. Could be a great sign, as it is an effect that Macie got to the stem cells. Hoping and praying daily.
July 2nd, 2009
Next Posts
