Hi! It’s Georgina. Lawrence did very well with his 2nd spinal. He prayed before the procedure, let the valium work and let the doctors get in on the first try. He went into the procedure room at 4:00 and was out at 4:20. He was much more relaxed afterwards and not as grumpy! Yeah! His sister has been helping me take care of him and watched over him, while I went to the community kitchen to fix her and I dinner. She has been such a good helper on this trip. I don’t know what I would do without her. Lawrence will be able to have something to drink in the next hour. Then, something to eat at 8:30 p.m. and get up at 10:30 p.m. We are half way through the treatments, I can’t believe it. 2 more IV’s and2 more spinals. God opened this door for us and everything has just fallen into place. We are now watching Hairspray with our new friend Nena from Switzerland. She has ONH also. Thanks to everyone for their prayers, they are working. We also read all the comments and we are so blessed to have so many people taking the time to read our blog and leave comments. We enjoy reading your comments.
July 8th, 2009
Hi! It’s us again. We haven’t blogged much, since there hasn’t been much going on except for accupuncture and electric wave therapy for Monday and today. We got our schedule for tomorrow’s spinal, it will be 4 p.m. Lawrence has decided he will try to relax more and let the valium work, Please keep him in your thoughts and prayers at around this time, so that it can go well. We will fill you in tomorrow.
July 7th, 2009
Today is Sunday afternoon. Yesterday, we had a day of therapy and then had some cake and ice cream that Debbie ordered for us to celebrate the 4th of July. It was weird to be in China for this day. We called it an early night and went to bed, since we had a big day at the zoo, botanical gardens and lunch today. Penny got us a large bus and we headed to the zoo, it was so crowded that we had to go to botanical gardens first. This was basically a large park with a few rides. Lawrence and Emani enjoyed themselves. Then we went to the zoo, which was different, we saw lots of animals, but no pandas. And of course, we got lost, with 2 other families. The language barrier is so hard, we asked for the exit (basically hand signals and saying ”bye,bye”) and they led us tothe wrong exit. So we had to find our way to the monkey hill to get back to where the bus was. That was adventurous! Then we ate at Napoli, an Italian restaurant, which was nice. We just got back to the hospital to be ready for another week. This week will be hard for us as 4 families are leaving back to their homes. Lawrence will have his spinal on Wednesday. Please help us pray that the pain is less this week.
July 5th, 2009
Hi! It’s me Lawrence. I had my 3rd treatment today by IV. IV’s are really easy and afterwards you feel very energetic. It’s kind of weird, but after the IV treatments, I feel famished. I didn’t get any therapy today, so my mom, my sister and I, along with some other families went to the Holiday Inn. After that, we came back and had a lunch of stir fry and noodles. After lunch they stuck me with an IV and got me ready for treatment. The doctors came today and told me the results of my eye test. Basically, my optic nerves are very thin, which we already knew. They will do another eye test at the end of the treatments, to see if there are any improvements. No eye itching todday, but let’s hope for the best. We pray every night that these stem cells will work. Thanks for reading!
July 3rd, 2009
Our day was great. Therapy as usual. Went to Lotte Mart to buy some more groceries. Said “goodbye” to 2 families that left . One little girl has ONH like Lawrence and her nystagmus has calmed down a lot. Nystagmus (his eyes move around a lot uncontrolled). We exchanged email addresses to keep informed of each other’s progress. I took the kids to swim. We’ve heard that exercise is great to stimulate the stem cells. Lawrence got a slight headache, but did great. At dinner, he said his eyes itched. Could be a great sign, as it is an effect that Macie got to the stem cells. Hoping and praying daily.
July 2nd, 2009
Lawrence did very well with the stem cells. No headache. Yeah! He woke up at 1 am and ate an apple and an oatmeal square. He was able to go back to sleep and we slept till 5 am. Dr. Tony came in to explain that Lawrence had the most amount of valium and still was very tense. He is going to try to relax more next Wednesday. He will have another IV on Friday. That will be very easy! We went to the eye doctor downtown. It was sooooo long. We left the hospital at 12:30 and didn’t come back until 6 pm. There were so many people and it was kind of frustrating, He got his visual field test and VEP. The Beike doctors will tell us the results tomorrow. We got back, had pizza, and I took them for coffee across the street. We are praying every day during accupuncture and asking the Lord for his will. Please continue to keep us in your prayers.
June 30th, 2009
It’s Georgina again! Lawrence just got back from his lumbar puncture. He was very nervous today and did not sleep last night. They wheeled him in and took about 40 minutes. We are in the room now and he is lying still. He said that it was very painful, but not as bad as he thought. He said he could feel it all the way to his bones. He even says that he could feel pain shooting down his legs. They had to administer more valium, since he was tense. Even his accupuncture hurt a little bit. I am glad that the first one is over and will be praying that he does not get a headache! He won’t be able to drink for 2 hours and then eat for 4 hours and move for 6 hours. We’ll keep you p0sted. God is on our side and we have faith that these stem cells will work, work, work!!!! Please continue to pray for Lawrence!
June 29th, 2009
It’s Georgina! Yesterday, we had a day off. Emani and I went to the RT Mart while Lawrence stayed at the hospital with his new friend Kyle. I needed to buy some vegetables, since our stomachs are happier with my cooking. Later in the evening, we went to get a coffee with our new friends. Kyle has become my new “mijo” . Today, we got up and were planning to go to the zoo, but it was raining. So we changed our plans and went to Under Water World, which is inside. We went with two families and had a great time. It was an aquarium under ground. We had to be back at the hospital before 3 p.m. Lawrence will be getting his first spinal tomorrow at 5 p.m. We’re a little nervous, since it is an “unknown” , but I’m sure Lawrence will do fine. I will continue to keep you posted!
June 28th, 2009
Today has been another great day. It is his last accupuncture and electric wave for the week. The doctors came today and checked on him. (about 6 doctors) We will be going to an eye specialist on Tuesday, pending on the way Lawrence feels after spinal. The eye specialist will give him a VEP and other vision specific tests. If he doesn’t feel well, we can go on Thursday. I will keep you posted on this. Other families have told us it is an all day trip to the eye specialist. We have the weekend off, however, Sunday we need to stay in. I’m going to get Lawrence andEmani out tomorrow, since we are off therapy. We will be joining some families for dinner tomorrow night at the Hot Pot. That should be lots of fun! By the way, I made a better breakfast and lunch today. Cooking is getting easier.
June 26th, 2009
Hi! It’s me again. I woke up, showered and ate breakfast as usual. After which, my usual therapy of accupuncture and elecctric wave therapy ensued. Once this was done my mom, Emani and I went to the RT with a family from England. It still took some getting used to knowing the chickens and other meat products were not refrigerated. We needed quite a few things and it was really hot. There was a large international isle, filled with things that I hadn’t thought I would see. It’s interesting to me that when we go anywhere in a taxi, we have the translators write the place in Chinese and then we also have a paper with the hospital in Chinese to get back. I had my afternoon therapy and felt great. We got my stem cell calendar and my first spinal tap is on Monday. That means we have Sunday off, but won’t be able to go out. They do not let us leave 24 hours before a spinal tap or 24 hours after. I will keep you posted.
June 26th, 2009
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