Effected with LHON
November 22nd, 2009
To everyone effected with LHON or a family member who’s effected:
This post is for everyone who’s been able to contact me or have read this blog. There are friends, family members, or yourself who have LHON and took the time to comment my blog, email, or even find me on facebook. It’s been such a pleasure talking to you all. As busy as I may be sometimes, its so great to recieve a message from one of you. Honestly, you guys brighten my day, it lets me know that this blog had achieved a purpose and I was able to reach it.
You guys may think I’m inspirational or your hero as some of you have told me. I truly believe you are my inspiration and my modivation. I know if I ever need a word of encouragement, you’ll always be there. It’s quite comforting actually.
It has been such a blessing to be able ot talk to all of you. I’ve made some great friends through this blog, email, and that LHON facebook group. I hope to stay in contact with you for awhile, and never know what the future brings for us. We may even be able to meet one day, if we make it happen. It would be lots of fun.
Also, none of you guys ever have to worry if your bothering me or not, because your not. I will always try to make the time to talk to you. It’s an incredible experience for me, that I’m unable to even put into words. It’s so great to hear everyon’s stories and know what they’re actually going through. Or how people have delt with certain things and how I’ve had some of their similar experiences. When you think no one has any idea what your going through or how you feel, your wrong. My family and I…especiall me have gone through those experiences and am not afraid to tell you about those things now. I’[m here to tell you all the things I’ve had to go through and how it had made me a better person and you can be the same way.
Well, just wanted to let everyone know you have made a difference in my life. I can’t thank you guys enough for all you’ve done. I’ve been able to share my story now with so many people. And I hope to hear from more of you guys who have yet not had the time or oppurtunity to contact me. Or even to those who haven’t been able to find my blog.
I will always be here whenever you need for questions, concerns, or comments. Or if you just want to check in with me. I’m usually pretty quick about replying to messages and what not.
Again, my email address is michellgip@hotmail.com
Hope everyone is doing well. And during this month, take a moment and think of something you are thankful for and how good life. Just use the rest of this month to reflect on the positive, and try not to think about the worries, stress, and concerns you may have on life no matter what it may be. It’s hard, but I know you guys can do it.
Take Care
Entry Filed under: lhon,Uncategorized
1 Comment Add your own
1. Lucia | March 22nd, 2010 at 4:59 pm
My son is 15 years old and has lhon. How is your current vision status? How has it changed since taking stem cell treatments?
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