3rd Stem cell treatment wednesday 22nd July 2009
Hi all,
Just catching up on the paperwork otherwise i will fall behind. Today we had stem cell three done by IV and Aine started a little cranky but settled down. After this IV we found that Aine was constantly banging on her ears, shouting and very agressive biting on things. This side of Aine we hadnt seen in a while and figured she had a pain and seeing that she couldnt tell us its harder to deal with but i figure it was in her head. Later that day she fell asleep for a short while and her left hand started to shake slightly. Generally if this happens ita a sign of a mini seizure so we asked tony her doctor to take a look at her and between us we would keep watch if she started to seizure but by morning after a good night sleep so was ok. What i have noticed is that after each stem cell aine got very moody and extremely hungry, we just couldnt feed her as she was eating double for the next day. The next day Aine was still off form and tom her therapist suggested doing acupuncture to relieve her headache and it did thank god. She was very vocal all day and her form really picked up. On friday she woke up with a rash on her face, we thought from dribbling but now i think its from the shower, the drain of the shower, well i dont know when it was cleaned last so bacterial is a problem and everything needs to be scrubbed . In the kitchen we have said to the translators that their is no hot water and its impossible to kill bacterial or was delf in cold water, hopefully this will be adressed soon. We cook alot because of Aines diet its not easy to get food to work with her and somedays it can be hectic in the kitchen when everyone is in at the same time. There are only two rings to serve all on the ward to cook, ive asked that this be dealt with as children with special needs have to be dealt with first as i know with my little girl she wont wait when it comes to food. They could do with another two rings in the kitchen area and more space to cook.
Today is saturday and we are on a day off so we went down town to the walking market and found mcdonalds, just like home with good beef and god were their burgers good. Handbags were a great buy here and real leather and even good quality leather shoes. Sam was a great help and a very patient man considering men hate shopping! Aine was in great form and i think the area is called li linn walking street. While down town i got ds lite games for my son conor and they were a bargin, he will be thrilled with this as we got 30 games for alost fifteen euro and at home its 40 euro upwards a game.
Sunday the weather wasnt great so we didnt go out till later in the afternoon and headed to lotto mart across the road. Then it was a quite night in with the dvd as aine stem cell treatment tomorrow.
So many lovely people we have met here and we are all like one big happy family, the results for some are amazing and to see someone come in to the ward in a wheel chair and go out on a hand stick walking well, that says it all. We have had some good nights telling stories and swapping jokes etc and we made many friends in the same boat, here to help their sibblings or a family member. One gentleman who came here with his daughter, i know he wont mind me mentioning his name but Don you are an inspiration to all to come here with your daughter ella alone and dedicated your time to helping bring the best possible help to help your daughter, take a bow Don! Ok i wont embarris you any more. Have to sign off now, as time to give Aine her snack before bed. We follow the next update shortly.
all the best for now
caroline, matt and our little patient aine.
Add comment July 30th, 2009
