Archive for August, 2009
Hi all,
We arrived back on irish soil late on thur night after a long journey but not sorry that we made the trip. At the end of our experience in china we appreciated what we had when we returned and enjoyed the experience of the chinese culture. To all the staff who looked after aine i say thank you for your time and dedication and wish you all well in the future. John, Hawkim and Matt it was a pleasure to meet you all and i hope some of my tips will help in helping other parents and childrens stay an enjoyable visit to your country. Thank you all for the opportunity to help our daughter improve her life and for the experience of your culture. Go raibh maith agat! Love to all left behind, we will not forget you.
Best of luck for the future
caroline, matt and our little patient aine xxx
August 11th, 2009
Ok everyone , on the count down!
After aines doctors visit from tony this morning she got her las IV in which was difficult to find a vein as they had all been use up in her feet at this stage. Aine was in bad form today and she was very upset and agressive and eventually fell asleep when it was time for stem cell treatment as the stem cell delivery was late arriving. The nurse agreed to do aine last and it could be done in her room as she would get very upset if we woke her up, so we did. Everything started well and then i noticed that her ankle was starting to swell up so i asked the nurse to stop which she did, the iv had come our of her foot and the water that flushes through the iv first had inflamed her ankle but i didnt panic as i knew this had happened another patient and their was no harm done. In fairness its hard to keep a child still with an iv in their foot so this can happen, the iv was then put in her hand and we had no problems and the last stem cell treatment went through with no further problems, aine went back to sleep and all was well. Her little ankle went down quickly and the nurse checked her every couple of hours so all was well and no harm done. The nurses were so good with the kids and they always made them feel comfortable around them and had fun with them so they are to be commended fot their attention . Time now to pack for home and our last acupuncture is tomorrow morning and then its off to the mountains with michael the translator to see the sights. This was a great day and then we went for a buffet in a hotel near by to round the day off. Wednesday we didnt do much except say our good byes to al the lovely people that we had met on our travels and collected emails to keep in contact with all our new friends. Well time for be now as an early start in the morning for the airport. Sad to leave all behind but looking forward to seeing everyone again soon and having a reunion with all our new friends next year, who knows if all goes well we migh even go back to china again!
Bye for now and love to all in china and beike.
caroline , matt and our daughter Aine xxxx
August 11th, 2009
Hi everyone ,
Getting near the end now! Stem cell treatment no 5. This was another cord (white) and all went well but she was in a happy form today and hyper. She was more playfull today and started to pay more attention to the tv when it was on so her concentration was improving. We have mte so many amazing people on our travel to china and we will hold them as very dear friends in the future. We are all here for one thing and that is to improve our sibblings or partners lives and this we are all united on and believe that this will happen. Despite medical doctors in our countries they must understand that life is presious and that you will do and go anywhere for our kids. We felt this so much as we had lost a child in a horific traffic accident two years earlier and our little angel has given us the strength to fight for Aine for a better life. We will always hold close to our hearts our precious little angel and deal with the pain in time but she will never be forgotton as always be loved. Aine has an special guardian angel over her and we believe with the help of stem cells that we will get our little girl back to as close as normal as we can. Stem cells are the way forward and we need to show people there is help out there and never to give up on the ones that we love. Aine now plays alot more and is a very happy child and we hope that when she returns home that she will continue to get better. The next day we found that aine was very hungry which seems to be a pattern for her after treatments so this was another day of cooking on the double. Today we went down town to Jimo market and did our last minute bits of shopping before we packed for home. We now miss our other kids and look forward to having a family reunion when we return. After shopping we went to Pizza Hut and enjoyed a lovely meal and aine came with her own food so we could relax over a glass of wine. The day is over now and time for bed with aine and tomorrow another day in the life of stem cells.
night all.
caroline, matt and our little patinet aine xx
August 11th, 2009
Hi all,
Today Aine had her 4th stem cell treatment and this was cord which is white in colour not yellow. After this treament we found that aine was very calm and relaxed so we were waiting for the storm which usually comes not long after treatment. The day went off well and later that night we met with the other parents for a chat and a laugh. The following day an amazing thing happened, Aine was doing great things in OT, she was walking the steps and handing the ball to tom and then to matt, this doesnt happen that easily but this was a day that she was so attentive that even tom was amazed. The next day she was very tired and all she wanted to do was sleep but as the day went on she improved. Time was strating to go quicker now as we were use to the way of china and it was relaxing. The staff were so helpfull and the people in the area that we came across wer so honest and trusting, they wouldnt even take a tip!.Well that is all to report until the next treatment.
all the best for now
caroline, matt and our patient ainexxxx
August 11th, 2009
