6th January 2010
Hi Everyone,
Christmas is over us all now and had alot of snow since christmas eve, today we have 4ins so we will be in for a while. Aine was out in the snow and was fasinated for a while then she started to feel the cold and kept calling Mom so i knew it was time to come in. Up to christmas eve she was down with a headcold and a viral throat infection which triggered a slight seizure. Nothing to panic about as she bounced back and it didnt effect her appitite. Since our last post Aine knows what she wants and she is so active on her feet and so much stronger overall. One of the days i got delayed collecting her from school and when i went into her class she was crying her little heart out, her teacher never seen her so upset and she kept saying MOM MOM. She had her back to me when i entered the class and i called her name and she instantly turned around and smiled saying mom. This might seem a small thing to most parents but to the parent of an autistic child its huge. Generally in school she is so much more focused and does her work at ease and her concentration so much better. Over the christmas holidays some of her food i felt left her a little hyper so ive had to eliminate them from the diet and change the diet slightly which seems to be better so far and her bowel movement is so much better than before. I found her watching horse racing the other day with her day and i was stunned to see her reaction.
Christmas morning was amazing as she came down with the other kids and the sense of amazement on her little face when she saw all the toys from santa. She stood with her little sister Grace who is 1.5ys old in front of the toys staring at them while their sister Roisin 7yrs and Conor 10yrs were hyper with excitement with what they got. We put this all on video and watched her check out one of her toys Mr. Tickles which brought great sense of delight and fun . This was the first christmas that Aine reacted to and made it a great pleasure for us as a family after all we had been through over the last three years since loosing her sister in a trafic accident, Today i watched her as she just lay across the couch watching tv with one of her new toys in her hand, her baby sister took the toy from her to check it out herself and aine reacted the took it back from her and said bold baby. We feel that the stem cells are still working and she does have up and down days like any normal child but we have no regrets, she has changed for the better and we hope we will see more improvements. Aine has a long way to go but i do believe she will get there with a little help and stem cells did work for her, they didnt cure her but we knew that going out to china that this was not a cure but if they help bring a child or adult on from where they are, is that not progress in itself and proof that they do help.
Ok i will keep you all posted on further up dates and to all our friends that we met in china that are keeping in touch we say hello. To ella in colorado , well done you are an amazing kid and doing so well , keep up the good work and thank you to stem cells. We will update the blog again soon after we do all the tests we have before us and her appointments with her doctors in the coming months with her gut problems.
Bye for now,
Caroline, matt and Aine xxxx
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