21st April 2010
Hi everyone,
Aine has kept me so busy that time has got ahead of me and i need to keep you all up to date on progress. So much has happened since january and thank god all for the better. I have fine tuned Aines diet and this has lifted a big cloud over her, i finally feel we are starting to see the little girl that has been locked inside herself. We are now almost 2yrs free of antibiotics and Aine now fights any bugs and viruses herself. Overall she is a stong happy child that has been through so much and still manages to smile her way through the day from the time she gets up in the morning. Henning, matthew and Jon have been keeping in touch which has been great so we are kept up to speed on what is happening our in china.
Since my last post Aine has a new teacher in school which she has adjusted to very well and her sna gives me daily reports on what Aine is up to during the day. She is getting clever and some days she calls all the shots and decides what she wants to do for herself. Her language is coming on slowly and she is trying to put words together. Now when you ask her if she wants to go to bed she shakes her head or if she wants something to eat she nods up and down. She recognises photos and would say mom or dad and now even when the girls ask her where is scamp she picks up the photo. In ireland we have a big problem with sna teachers at present but this hasnt effected aine as she still gets one to one daily and all the girls love her but she loves attention herself.
We are back in crumlin on wed to start coming down off her epilipsy medication so please say a little prayer that we can get off these drugs and leave the seizures behind and cured. We do alot of other treatments with Aine and these are all helping. Her osteopath is so gentle and the best in the country so i have great faith in him and he has such a bond with Aine which is amazing to watch.
Before china Aine had no sense of awareness , she couldnt have a warm bath, she was very sensory and her life skills were very weak. , To date Aine recognises people and smiles or puts her cheek to theirs, she can now have a warm bath and the other day she fell in school and grazed her hands and took them up quickly and held them tight crying mom , mom. This in itself is a major achievement as she could not feel pain when she fell and now she can react. She is gone very emotional and when i go missing she checks all over the house for me shouting mom so she is aware that i am not there for her. You put on her coat and she will go to the door and say open. Her eye contact has been amazing and she is learning so much daily, her favourite thing to do is to watch westlife on the computer and sing away with it or listen to it on the cd player, She watches tv and laughs at the funny parts and now loves the simpsons.
We hope to return to china next year all going well as stem cells have done so much for aine and even her doctors havent the answers here what has helped improve her and she is growing so tall which is a good sign. She will take your hand when she wants to play and even in school will get on the swing in the sensory room herself. She loves the trampolene and enjoys lying back and watching the clouds or bouncing . At school she has done so well and now works hard for her rewards which generally is food ie banana etc.
To stand and watch Aine she is like any other child and we have seen her do so well in the last year that we look forward to what is ahead for her to enjoy.
Ok will keep you posted on her test results next month, so until then thanks to all who keep in touch especially all our china pals, maria and gretta, Don and Ella, Matthew, Darren and Dakota who have just completed another round in china which i hope goes well for Dakota. We love to hear how you are all doing and keep the emails coming. June and nana we also say hello and will be in touch soon,
Bye for now,
Caroline, matthew and Aine xxxxx
2 comments April 22nd, 2010
