November 16, 2008
November 16th, 2008
It’s a beautiful, sunny sunday so eight of us (3 patients, 3 caregivers, and two aides rented a van for the day. The driver took us along the beautiful shoreline. We had lunch(really dinner) at Pasta Fresca da Salvatore. The chef is right from Italy but spoke english and cooked for us to order along with his wonderful tales of being a Doctor and soccer player. He met a chinese woman and that is how he ended up here. He was delightful. Then we drove to the site where the sailing olympics took place. Took lots of pictures. It was so good to get away from the hospital for all of us. Tomorrow starts an intense schedule of acupuncture, electrowave therapy, pt and an IV treatment which shows if Al is allergic to the stemcells. If not, his first spinal treatment is on friday. We can’t wait. If we thought we would be on our own here, we were so mistaken. We are a close, supportive family taking care of each other. More tomorrow.
Entry Filed under: ataxia,Uncategorized
6 Comments Add your own
1. Chris | November 16th, 2008 at 8:51 pm
Wow, that sounds amazing. What a group of people.What happens if Al is allergic…do other treatments continue? It sounds like you are settling in quite nicely. I am so glad to hear that the folks aiding you and Al are so helpful. Charlie and I are going today to see the new revival of Pal Joey with Stockard Channing and Martha Plimpton. I’ll let you know how it is. Also, we went to a lecture this week- Liz Smith (82) interviewed Elaine Stritch (83) it was so good- all about NY in the 1950′s, Noel Coward, etc.
Love you both, Chris
2. Jan Roger Bauer | November 16th, 2008 at 11:42 pm
Sounds like a nice vacation except for one major problem – hang in there – our thoughts are with you.
JRB
3. Linda Slade | November 17th, 2008 at 4:01 am
Sounds as if you have adapted to things well. An Italian chef in China….well, didn’t Marco Polo bring pasta to Italy!
Glad we have this vehicle to keep in touch. Best to you both and prayers continue to follow you around the world…each step of the way on your quest.
Love, Linda
4. Christine | November 17th, 2008 at 4:06 am
Hi Al,
Sounds like you’re off to a great start. We’ll bee thinking of you,get some rest, relax enjoy….best wishes,
Christine
5. mary kerr | November 17th, 2008 at 5:54 am
Hi Al and Joanne:
Glad to hear you had a good flight and are beginning to feel comfortable with your surroundings. I note in the blog list that there are several patients there with Ataxia. It must make it a little bit easier to talk with other people in the same situation. We’ll be thinking of you next week.
Mary and Jim
6. Jim and Sue | November 17th, 2008 at 8:17 am
Glad to hear that there is a “family” to support you two in this third world country!!!!!! Our thoughts and prayers are with you two!!!!! Sue and Jim
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