Alan’s MND & ALS Blog

hello people, back at last :) hehe

September 26th, 2008

hello everyone, im bk after 5 days with no internet, talk about being bored!!!

on sunday 21 of us (patients and carers) went in 3 minibuses 2 the dolphin pk and a shopping center for 7hrs cus every 1 was bored with no internet, it was good fun watching the dolphins doing all the tricks, then at the shopping center we found a mcdonalds and every 1 piled in, but we couldnt get a seat there was that many people in it, most of the clothes and food etc here is so cheap (40p for 20 cigs, 40p for 2ltrs coke) every 1 enjoyed themselves but we were so tired when we got bk,

bk 2 work on mon starting with the physio in the morning and then my 1st spinal injection at 2.30pm, the doctors came round to the room about 10am and ask me was i nervous about the injection and i said no, so he said that i wasnt getting any valume cus its bad for me so i said ok and they left, then about 1pm the nurse came in and put the IV into my hand for the drip, about an hr later the porters came and got me for theatre, i wasnt really nervous just a bit curious about wat was going 2 happen, so when i got in the theatre the nurses turned me on my side and moved me close 2 the side of the bed curled up in a ball,i think the surgeon was sitting on a low stool behind me and rubbing some liquid up and down my spine, then he give me an injection 2 freeze my bk and left it for about a min 2 freeze, i could feel him working at my spine (pushing something in) but it wasnt sore until he pushed a bit 2 hard which made me jump a little, he done that 3 times and my bk was a little sore for a while, then after about 20 mins he said that was it finished so they turned me on 2 my bk again and wheeled we bk 2 my room where i wasnt allowed 2 lift my head for 6 hrs, ur not allowed 2 eat or drink for 3hrs before the spinal or 4hrs after it, so when i got bk 2 the room i watched 4 films in a row 2 put the time in, when the 6hrs were up i sat up in the bed and it was like i had a brick sitting on top of my head, it felt heavy but no headache and the bk of my neck was a bit sore but not 2 bad. i also felt a small tingling around my groin area when i was getting the stemcells but i didnt think much about it for a while, i strained my groin yrs ago when i was playing football but i could only feel it when i stretched, so i decided 2 stretch it 2 c wat it was like and it was gone, so a bit of good news.

on tue i felt a lot better and bk 2 my usual self (giving orders lol) but still missing not being able 2 talk and email family and friends from home, so sat most of the day trying 2 find games 2 play on the laptop, had my usual physio and acupuncture that i have everyday.

then wednesday, wasnt a good day for me, i woke up with pains down the bk of both my legs, sometimes at home when i get them a couple of anadins takes it away but not today, the only way i could get rid of them was 2 walk about but that was making me feel tired, so i headed down 2 the physio room where jason was waiting for me, i told him about the pains and he took me 2 get acupuncture and heat lamps on my legs instead of physio, it took the pains away for a while but they came bk later so a few more anadins were called for and they actually worked this time, then about lunch time the internet came bk on yaaaaaaaaah something 2 do at last after 5 days being off, straight into the football results 2 see how the best team in europe was doing, OH DEAR 0-0 with 1 of the minnows, aw well bk 2 normal then lol, ok lets talk about my treatment or something else before i start getting depressed hahahahahaha.

rite wat day r we on now (god im so depressed after seeing that result loool) is it thursday? hmmm lets skip that and go 2 fri cus not much happened that day

friday spinal no2, well im not 2 worried about this 1 cus i no wats going 2 happen now (or do i), well the truth is i havnt a clue wat happened cus they must have knocked me out cus i cant rem a thing about it, i rem getting wheeled in and an injection into the IV drip in my hand, then i was getting wheeled bk out again so sorry folks no gorry details this time, i got bk 2 the room somehow and put a film on then woke up nearly 4hrs later so cant tell use 2 much about today, its 11.30pm here now and im wide awake, ive been up for 3 hrs now and still no headache,the bottom of my bk is just a little sore but not 2 bad,

anyone that is reading this blog plz feel free 2 leave a comment as i enjoy reading them, and any questions u would like 2 ask i will try and answer them for u on my next blog or leave an email for me on (alans1000@hotmail.com)

byeeeeeee for now, miss u all

Entry Filed under: als,Uncategorized