Hi Tina, Allie had a pretty quiet day today, she didn’t sleep much last night, so took a couple naps today, and felt much better for it. She was scheduled to have therapies today but not tomorrow, and we were able to switch so she’ll have thim tomorrow instead. We are happy that she has done so well with treatments, some people and kids get fevers that last a couple days . We found out that the anethesia she got was the same both times but the first time it was injected intramusculary and the second time intravenously. So for the next time we can choose how we’d like to have it. Meaning if she gets it in the butt it hurts like heck for a few minutes and she probably sleeps well and if she gets it iv then it doesn’t hurt but she may be awake and disoriented after and we have to keep her lying down. Well , more later, Charlotte
June 19th, 2008
Unfortunately, Allie did not do as well with the second treatment. Tait told me that she screamed for nearly 6 hours. The doctors decided (without telling Tait and Charlotte) that they would change the anesthesia since she slept so long last time. Meanwhile, Tait had her skip her nap so she could sleep long! She needs to lay flat anyway, plus it was night time. So the result of this was hours of screaming and apparent discomfort. The language barrier is a real problem. There are not enough translators and when there are, they can’t always understand either. I’m on the phone and the net trying to resolve this as I am trying to control my anger. Speaking of anger, there is an awful, obnoxiously loud Romanian woman who yells outside the room each night. Tait told her off. Apparently there a lot of people upset by this woman, so they will be addressing the noise level with Wendy (translator and a coordinator(?). Anyway, things are stressful there. Hopefully Tait and Allie will get some sleep and things will simmer down a bit. Still no word on when and what the next two treatments will be … and there are 9 days left…again a lack of communication.
Tina
June 19th, 2008
