Allie’s Encephalitis Blog

After effects of the second treatment

June 19th, 2008

Unfortunately, Allie did not do as well with the second treatment.  Tait told me that she screamed for nearly 6 hours.  The doctors decided (without telling Tait and Charlotte) that they would change the anesthesia since she slept so long last time.  Meanwhile, Tait had her skip her nap so she could sleep long!  She needs to lay flat anyway, plus it was night time.  So the result of this was hours of screaming and apparent discomfort.  The language barrier is a real problem.  There are not enough translators and when there are, they can’t always understand either.  I’m on the phone and the net trying to resolve this as I am trying to control my anger.  Speaking of anger, there is an awful, obnoxiously loud Romanian woman who yells outside the room each night.  Tait told her off.  Apparently there a lot of people upset by this woman, so they will be addressing the noise level with Wendy (translator and a coordinator(?).  Anyway, things are stressful there.  Hopefully Tait and Allie will get some sleep and things will simmer down a bit.  Still no word on when and what the next two treatments will be … and there are 9 days left…again a lack of communication.

Tina

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