June 22nd, 2008
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| Hi Tina, 4;30 here on Sunday, we have Allie’s schedule for final week. She gets spinal on Monday and IV on Friday. I was kind of surprised that she would have a treatment on Friday considering were leaving on Saturday but the people next to us said the iv’s are very easy on kids. Allie woke happy smiling and very loose this morning as usual. So we did stretches and rolling. We have noticed that she is much looser in general but also more floppy. Tait said that he had read about a little boy with cp who had the same thing happen after treatments, I guess its a good thing but she will need therapy to build up her muscles I would think. This week I will get on the therapy table and have Tom show me exactly how to do all the therapies he does with her, I have been taking pictures, but its best to be shown how. Allie has been sleepy today and is taking a second nap with Tait. Earlier She played with toys in the lobby and then sat with a little Chinese boy that was playing and just watched him. Then I took her down to Jen’s room and we laid Austin and Allie on the bed to see if they would look at each other. eAustin wasn’t interested and Allie didn’t want to lie down. Oh, well. Tonite I am cooking an American meal,Chicken(though I’ll have to cook it in a fry pan} mashed potatos,broccoli and salad. Hope all is well ,Charlotte |
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Entry Filed under: encephalitis,Uncategorized
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