Allie’s Encephalitis Blog

Tait’s update

Allie ate some yogurt and sunny day bar, seems better. She needs to sleep though. I think she has really had it by now. The iv  last night was rough second try worked but she was freaking out before they stuck her and really got upset when they got it in.  She cried a lot when they removed it today.  She seems very homesick and has not been happy for days now. Some people are getting more treatments while here, but Allie can not tolerate any more and it is good that we did not get 5 or 6.   There is a child here about 10 and she had an accident that left her severly impaired, bed bound and no speaking or movement.  After the first treatment she has vocalized for the fist time, and after a few more treatments she now won’t stop making vocal sounds!

Mom is walking Allie up and down the halls.  I must get her to sleep before accupuncture. She is so sick and tired of having people poke her. She pee pee her diaper so much last night that it soaked the bed. The laundry is so gross that we have to hand wash everything.  I had Amamda tell the laundry people that they do a bad job and i will not use them again.  Another parent expressed his disapointment as well . Some people just wash there own and hang it all over their roooms to dry. Dany’s camcorder is the same so he charged my batery and now i can continue the “movie” . It will be fun to get everyone together to watch it on our TV.

Add comment June 24th, 2008

Allie’s Third Treatment

Tait said Allie’s treatment went well so far.  It was only an hour after it that I heard this though.  It was given via spinal at 8pm Monday (China time) and again, she needs to lay flat for 6 hours.  I hope that is going well.  Will follow up as I know more.

Tina

Add comment June 24th, 2008

Treatment postponed until 8 pm

Hi Tina, Monday morning here, Allie just finished her morning pt.  She did really good. That position I told you about with legs apart,back straight , arms straight up- she screamed and panicked the first time she did that.  This morning not a peep she just sat there for the whole 5 or 7 minutes and looked around at other people in pt. Just shows what repetition and consiseancy can do. We just learned that stem cell are late Allie has been postponed till 8 this evening, which actually is good, we have time to get more food and fluids into her.  Tait and she overslept this am and she hasn’t had much. She finally ran out of pear sauce we just borrowed some from the boy next door.  I hope treatment isn’t postponed any later, you never know here. And we don’t know if its a weather issue or what.  Will keep asking questions thru the day. well more later, I need to get some breakfast Charlotte

Add comment June 24th, 2008