Archive for June 28th, 2008

Coming home!

Allie, Tait and Charlotte are flying from China to Los Angeles as I write this!  They are so happy to be coming home and I CAN’T WAIT!!!!!  Allie did well with the IV treatment after they found a vein.  The whole gang there had a big taco supper together and said their goodbyes.  Meeting such wonderful people made being away from home bearable and even enoyable for them.  It shows us that bad things can happen to good people, yet hope and strength still lives on.  None of us will give up.  So far Allie’s tone is already better and it seems vision too.  Plus those smiles were worth the whole trip!  Any changes that happen with Allie will be gradual, as the cells need to grow and multiply and lots of therapy needs to be done to train her brain to complete tasks.  It is still a long road ahead with the need for therapy, repetition, adaptive equipment, bracing and lots of LOVE.  Thanks to everyone who helped us with this journey, especially Mr. Ray Tye who funded the treatments.  Also our friends and family for their constant support and successful fundraising, including our friend at John Adams HealthCare (my work), Knights of Columbus, Katrina Bernard (Miss Derry) and Jan Ferrigno and our new NH friends, Auntie Lori and Courtney and everyone who had a hand at making this happen.  Our next step is conductive education to train Allie’s brain.  I’ll let you know when they land. 

Love

Tina

Add comment June 28th, 2008

Friday’s treatment

Allie’s IV was tough today.  I had to yell out stop! Take it out! They were poking and twisting the needle and she was screaming so much. The head nurse came in and got it first try.  Now she has been sitting and waiting for an hour with IV fluid and a drug of some sort prior to the stem cell injection. They will do it soon I have been told.

Tait

Add comment June 28th, 2008


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