Amy's SOD Blog

Update…

November 28th, 2009

Hi all,

Just to say Amy is slowly on the mend. Her temperature has broken but she still isn’t 100%. Its turned into a cold now. Poor monkey!

Next treatment, which will be No.5,  is on Monday. We have also gone for an extra treatment taking her up to 8 instead of 7 as we feel it makes sense to get the maximum amount of stemcells whilst we’re here.

I thought that i’d let those, who don’t already know Amy, know that she also has Autism as on here she is on the SOD blog (including hormone deficiency).

Amy is unwilling to socialise with many (or allow us to) and is unco-operative with life outside her familiar routines making family life quite isolated. Her communication skills are limited and she becomes irrate regularly throughout each day. Aswell as possible light perception (as she is black blind), we hope that Amy will one day open up and let the outside world in. She has so much to give and we hope that Amy will begin to become more relaxed and allow us to help her help herself and teach her as we feel that she is missing out on the joys that life can bring. At 8yrs old its getting increasingly more difficult to handle pickle as she’s a big girl now. Who knows what the future may bring.

Anyway, 2 weeks to go before we come home now! We really cannot wait to see our son, Lewis, and all our family and friends xXxXxXx

On the other hand, we have met wonderful families here from all over the globe and without them this would of been so much harder…so BIG thankyou to them all:) Amazing Keiran, Cheeky Spencer, Baby Angel Summer, Soldier Boy Matty, Brave Mia, Lil Cutey Jake,  and new arrival Sweety pie Mallory are all champs and put us ‘Grown Ups’ to shame! We’d moan like mad!!! And there are more families yet to arrive…Cassie & London, we’ll see you soooon!!! Have a safe trip and Cassie…try your best hunni It’ll be ok <3

Ok, thats it. We’ll next write on Monday n let you know how treatment No.5 went <3 Feeling a lil more positive after the last experience.

Love 2 all xXxXx

Ps. Hot water is a nightmare over here….Room 10 is the one to be in (our room-but not whilst we’re in it, lol) It was previously Dakota’s and Hollys so i just saw – we we’re lucky!. We’ve had no probs so far and feel for the other families as hot water and heating are basic human needs! And be prepared to get aches n pains as the beds are like sleeping on your dining room table..OUCH!

Oh…and we have the kitchen back!!!

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