Archive for September, 2007

perhaps a cause of my numerous fevers

i had my last appointment with my rheumatologist here in london august 13th. i told him that i keep having fevers and even emailed him the information, just in case it was my SLE causing a flare with all my fevers. well, my dr didn’t think it was caused by my SLE but then again…he’s been mistaken twice before in the past, so i am always cautious about listening to what he says. luckily he’s in a group with a brilliant head rheumatologist so that’s why i enjoy being seen by that doctor; if there is ever a problem, i can always see the head guy who is just a lovely man!

now i also mentioned that i’ve been going to the hospital for tropical diseases here since i’ve been back. my GP suggested i go there and i’ve been seen by 3 different doctors there. they’ve taken so much blood from me and have done so many tests on my blood. well, last week on thursday i had another appointment with a doctor doherty. he listened to hubby explain my illness’ history and then he went through the blood results.

they tested me for everything such as malaria, denghi fever, meningitis, etc. well, luckily i didn’t have any of those but one test came back positive–the one for strongyloides stercoralis. it’s basically a worm in my small intestine. it causes leakiness in the intestines and it’s fortunate they found it early because it can actually death, in the extremist cases! the doctor told me that he wanted to check my blood for one more worm, the filarial one, so after he prescribed me some medicine, i had to go get more blood taken. i haven’t heard back from the hospital yet but we’ll see….

i went to the pharmacy to pick up my medicine which is prescribed according to one’s weight. i got 4 tablets and i took it that evening. i got a brochure on the medicine and it takes 4 weeks for the medicine to have a definite effect. unfortunately i still continue to get fevers, like yesterday it was 38.0. at least today, my fever was only 37.3 in the morn.

hopefully that medicine helps cure me of these horrible fevers.. it’s unfortunate that the medicine takes so long for a definite effect. sigh.ok, so that’s my update.

********p.s. this is also posted on my yahoo 360 blog:

http://uk.360.yahoo.com/mbinim

5 comments September 11th, 2007

still getting fevers

i have to tell you that it has been 2 months since i checked out of tiantan puhua hospital in beijing and you know what? i am still getting fevers!!!

i have written my junior doctor, doctor xi, at tiantan puhua about my fevers and i requested that she ask the directors also about why i am getting these fevers. she told me that the directors at first were saying that maybe it was due to the medicine i have to take to keep my SLE under control. i also asked her if they’ve had other patients who have had consistent fevers after they checked out, and dr. xi told me that no, there’s been no one else who’s had consistent fevers like i have.

luckily in england, the british people travel quite a lot, and they have hospitals for tropical diseases which is where my GP sent me after i saw her a couple of times. she had no clue why i keep getting the fevers, so she sent me to the hospital for tropical diseases which is over by my main hospital, UCL (university college of london, i believe it stands for).

i’ve been to the hospital for tropical diseases 3 times so far. i went in today to give more blood. i went in last friday also and saw a different doctor who suggested i get blood cultures done. i have to go in 3 different days to get my blood pulled from 3 different places for the results to be 90% accurate. i have one more day to go in, tomorrow, and then i have another appointment on thursday. we’ll see what they say. so that’s my news thus far….

i still continue to do my tongue exercises so my tongue continues to improve. i still do my exercises left and right and up and down with my tongue twice a day, sometimes more. i still have to work more on my balance. since i don’t make it to the paracourse often where they have the balance beams, i haven’t been working on my balance as much. it’s unfortunate that the hospital didn’t give me any exercises to help work my balance. they were disorganized when i checked out. sigh.

******** p.s. this is also posted on my yahoo 360 blog: http://uk.360.yahoo.com/mbinim

2 comments September 4th, 2007

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