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Pansy’s speech is very much improved–her balance has improved–Dr. Bing wants her to walk without the crutch or other assistance to the bathroom 2 trips today–4 trips tomorrow–to the lobby Sunday and etc.–she can tie the drawstring on her pants–she can walk up the stairs backward in the therapy room. She needs very little help from me when she is walking down the hallway. The doctors are very much impressed with Pansy’s progress. She can do the finger to tip of the nose test very well.
September 6th, 2008
Pansy’s 2nd injection went real good. She had to lay flat on her back for 6 hours–no food or water. It was a spinal injection. Most all of the stem cells go the brain area with a spinal as I understand. She seems to have better balance–her toes have a healthy white color.
September 4th, 2008
They say you can have improvement up to 2 years–most improvements will come about in the next 70 days.
September 2nd, 2008
Pansy did have almost instant change after receiving the stem cells, but this is not true with everybody. There is a 47 year old gentlemen here from Belfast that also has a form of ataxia–he has received two treatments and he cannot tell that he has received any change to his body. All of Pansy’s vital signs are good–bp 114\80, Temperature normal, stool normal, urine normal, all other blood tests normal as per Dr. Bing. He is doing another urine test this morning (Tuesday) he wants the urine from the middle of the stream for the test–he is a little concerned about the white blood count. The ultra sound was performed Monday afternoon on the feet –it indicated that the arteries were not allowing enough blood to get to the toes–he did not recommend any medicine–just wear two pairs of socks and to soak her feet in a pan of hot water daily to get the blood flowing.
Pull up stem cell china–on the right hand side pull up Dr Payne MD blog–he is from Alabama and had a form of ataxia–he writes a decent blog–he received treatments about a year ago across the border from Hong Kong.
Pansy’s appetite is good (I am the cook) we have a canteen area here on the 8th floor with hotplates, micro wave, small oven, pans,and etc. I do a pretty good job on boiled eggs, noodles, toast and stuff like that–we have never missed a meal in almost 70 years.
Pansy has not any nausea, no rash, she has had dizziness for the last 20 years. she does not have the total body flush today–Pansy said that must have been one hot baby that the stem cells came from.
The first injection was by IV–the second injection will be a spinal tap on 09-03–they do several tests on the fluid they remove as per Dr Bing–they also check the pressure of the fluid, make sure there is no blockage in the spinal cord. Someway the stem cells go direct to the brain area–I guess with past experience they know which injection works best at which time.
Pansy is convinced she is going to get off the plane and go dancing.
I am doing the best–doing push-up contest with therapist–Jason the acupuncture therapist beats me doing push ups on his thumbs–I can beat him on the stretched out push ups–you lie on the floor with you arms out in front of you–it is a total core exercise.
September 2nd, 2008
Pansy can not see with her glasses–her eye sight is improving.
September 1st, 2008
Pansy’s entire body feels hot like she has a sunburn–even the bottom of her toes feel hot. She has a flushed feeling–her checks are pink–her chest is pink. She can lift her butt off the floor with her hands on the floor and her legs laying flat on the floor. Her balance has improved–she does not need as much support from me when we are walking. I guess those little stem cells are doing their job.
Two new child patients are suppose to arrive on Sunday–one from South Africa and one from Italy.
Savanna (8 years old) left yesterday for Missouri–she can now see–the stem cells treatments repaired her optic nerve.
August 31st, 2008
Pansy can lay on her back with her feet pulled close to her butt and raise her hips off the bed. That is a big improvement if you could not do that before. Dr. Bing is very pleased.
I was wrong when I told you that they used embryonic stem cells–they use umbilical cord stem cells.
August 30th, 2008
Pansy can move her feet, knees, and hips without pain–she has better color in her toes–her feet are not as cold–I guess the stem cells have improved circulation in her legs. She says she can see better out of her right eye. These might seem like very small changes, but all the parts have to work before you can walk or run. Dr. Bing is considering using ultra sound on her legs and feet on Saturday morning. I talked to Dr. Bing about one hour ago regarding additional injections–he said we could make that decision next week.
August 30th, 2008
The food from the catering service is mostly rice with side dishes of sweet and sour chicken, spare ribs with vegetables. Lucy (our translator) traveled with us to the market about 1 mile away. Most all items in the store are written in chinese–so you have to look at the pictures on the package. Dr. Bing compared the pulse in the left and right feet–the pulse in the left foot was not near a strong as the pulse in the right foot–you recall the nail on the big toe on the left foot comes off on occasion for no apparent reason. Pansy will receive embryonic stem cell IV treatment on Friday afternoon around 2PM. There 2 men here with ataxia–70 year man from Queensland has sca6-he will receive 6 treatments–he has shown improvement according to his wife–46 year old man from Belfast has had ataxia for ten years–he has received 2 treatments.
August 30th, 2008
Pansy had acupuncture, physical therapy, and electric wave therapy today–she will have these therapies everyday except when she is having embryonic stem cell injections. We cooked our meals in the canteen area today instead of ordering food from the catering service. Dr. Bing is very concerned about her lack of circulation in her left foot.
August 28th, 2008
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