Austin’s CP Blog

China3

June 18th, 2008

Not much to report today. Austin has had a slight fever so we have not done his PT therapies. I am bummed about that because the one day he had the therapy his body felt so good. He still had accupunture and e-stem. Austin was in fairly good spirits today. He has decided he does not want much of his foods and he has learned to spit things out! Not quite the improvement I was hoping for. He is starting to really fight me when I give him his medicine. It makes me so sad that I have to force the stuff into his mouth – and now he is spitting it back out! I just wish he could get off all seizure meds – maybe someday! I have not seen any seizures since Monday before the stem cells. And usually when he has a fever he has more seizures. So maybe something is happening. 

 I am getting stir crazy – I have not left the hospital since Monday. Hopefully tomorrow Austin will be at the top of his game and we can get out some. I bought a baby size tub and gave him his first bath in it today. He did not cry. He was a little cramped but it worked well and then I washed my underwear in the tub! They have a laundry service but they don’t seem to get the clothes quite as clean so I am going to try and wash my clothes myself. I sent some of Austin’s off to the laundry they come back tomorrow so hopefully they will be good.

I met a guy today – I think his name is Gabby. He is from Romania. He was paralyzed from the neck down and this is his 4th visit to China. He is now able to move his neck and arms and has feeling in his thighs! I am amazed with him. He said he was totally paralyzed from the neck down for over 10 years. He speaks Romanian, English and is learning Chinese. He helped me communicate with Tom (Austin’s therapist) today. He said that a very wealthy man in Romania is helping to fund his visits and others like him. He said the man wants to run for president of Romania. Sounds like a great man! I talked to him about some concerns. He is very knowledgeable about the stem cell process and with being able to speak Chinese understands more than most. It was neat to meet him. I have met so many neat people. There is a little girl here named Alli. She is much like Austin. We are hoping they will be great friends. Austin is about 7 months older.

Thanks for your support and prayers. God Bless.

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