Fourth Stem Cell Treatment
July 3rd, 2008
Austin had his fourth treatment today. It went well. I have not noticed a fever. He has been very happy and making lots of noises. Right after he got back from the treatment, he started moving his right hand and making noises like he was a little frustrated. They put oxygen (they just do it as a precaution after the anesthesia) on him and he did not like the cannula going up his nose. It made him mad. It is good to see him having more emotion. Some of the older patients have told me that often have more energy right after the treatment. Maybe Austin felt that. He had to lie down for 6 hours. I was able to give him some water after 2 hours and some food after 4 hours. I just feed him some applesauce and he ate just fine laying down. We had lots of friends visiting our room which helped make the time pass quickly. A new family is here also from Missouri. It has been good to meet them. Their boy Brayden has ONH. He has some limited vision and gets around wonderfully. He is amazing. He really likes Austin and comes in to visit and talk to him. Austin seems to brighten up when kids talk to him. I feel like Austin is able to grab things with his left hand better than before. Last night during his bath he seemed to really understand the word splash. I always try to get him to splash in the bathtub at home. The bathroom here has a handicap shower so I bought a baby tub at the local market and I sit him in it with a towel around him. It works fairly well. His legs hang over the tub when I wash his hair. Anyway, he started splashing and I got excited and said splash splash and he did it about 10 more times. Then he put his hand back into his mouth - sucking is such a strong need for him. Then I took his hand out of his mouth and he did another round of splashing. At home the most he has splashed at once is about 3 to 4 times. So I do not know if it is because of him being able to somewhat sit in the tub or if something is happening. I would like to think it is the latter. He got me all wet! It was well worth it. So cute. It made us both happy. Tonight he was very happy and talkative.
Please keep the prayers coming. We love to hear from you!
Entry Filed under: cp,Uncategorized
3 Comments Add your own
1. Grandpa and Grandma Becky | July 4th, 2008 at 7:12 am
Hey little sweetheart, keep up all that good work, so when you get home you can come out and go swimming with Abby and Amber and us too!!
Jenny, I’m so glad to hear his progress, and hope and pray he keeps it up. I know you are getting homesick, but hang in there, you’ll be home before you know it and in a few months, you’ll think how fast the time over there went.
Hugs and kisses to Austin,
Love,
Steve and Becky
2. Sherrie Stouffer | July 5th, 2008 at 1:35 am
So glad to hear that things are going well with Austin and that you were able to have a break and see some of China. Since it is going so well do you still want to do the fund raiser and next summer take both boys? Can’t wait to see Austin when he gets back.
3. Linda Swearengen | July 7th, 2008 at 5:12 am
Dear Jenny and Austin,
You are BOTH troopers and role models to us all! We are so thankful that except for some low temps, Austin has been healthy and able to get the stem cell treatments and PT.
Reading about your old and new friends and their experiences and outcomes is very encouraging, and we all are praying that Austin will show improvement and be a example to others who know him or hear his story.
All of us are thankful that this treatment is available, and that you and Austin are able to be in China. God bless you both!
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