Update 10/01/08
Hi,
Austin is doing well. He is moving his body more and I feel that he is seeing slightly better. He also makes more faces than he used to. He is getting more of a personality. About 2 weeks ago, Austin was sitting in his squiggle chair and I walked over to him and he looked up at me and smiled. I had two witnesses. He had this moment of clarity. I know he saw me. That was the first time in his four years of life that he smiled in response to someone smiling at him. My heart soared. It has been heartbreaking for me that my son could not smile in response to a smile. He just hasn’t had that ability. Then last week, Austin was doing OT with Kim and she was having him work on bearing weight on his arms. Darrin walked over to Austin and started to talk to him. Austin turned his head toward Darrin and got a huge smile on his face. So we all got excited and Austin even laughed! We could not believe it – for that moment we had peace. Our son responded to us like never before. It was so wonderful. He is still not able to respond every time someone talks to him but he is definitely more aware. It is like he has more moments of clarity. We just have to try and catch those moments. I will treasure those responsive smiles. They make this journey of trying to make him the best he can be worth it.
Austin started back with preschool this fall. He loves his teacher Ms. Christy. Someone from the schools comes 4 days per week for 45 min. We were also blessed to start back with therapeutic riding. Austin seems to love riding and the fresh air. He often squels when the horse gets to trot! He just loves movement. Then he also has PT/OT each twice a week. His schedule keeps us very busy plus his sisters schedule.
We are leaving next week to see Dr. Hammesfhar in FL. His treatment is supposed to help with the stem cells and I have been told by other parents that it has helped their child’s seizures. I am praying that it will help Austin’s as well. If we could stop his seizures it will help him so much. We had about 2 weeks of no seizures and it was so wonderful. That was when Austin had more moments of clairity. Anyway please pray for our trip. I will let you know what happens with the treatment.
God Bless and I hope this finds you well. Thanks for your prayers for Austin!
Jenny
Add comment October 1st, 2008
