Well we haven’t been out of the hospital for 2 days and to tell you the truth the days are running together and I am not sure what day it is or what I did yesterday. It is raining and the weather is gloomy. Things in the hospital have not been much better. After all of the kids getting sick on Monday, we think because of poor hydration, a couple still have headaches. The little eight year old boy Glen had his first spinal injection yesterday and woke up this morning with a headache that just kept getting worse until finally he was screaming in pain. I felt so bad for his poor mother who whenever would just touch Glen he would scream uncontrollably. You will have to read about it on his blog. It was terrible and they are going home. I now see what people meant when they said “wait until the treatment comes to America and they have worked out all the kinks.” The only problem is it may take years to come to the states and many people believe that as you get older the part of your brain that recognizes vision will fully developed and any new vision gained could not be processed. So for many of us parents we feel like we have not option to wait so many years. I do believe that the stem cells are working but the hospitals here are not like the ones at home and all of the parents are finding inconsistencies in the way they are doing things.
Besides from Bradley feeling bad and vomiting after his treatment the other day, he has made out fine. As of right now I can say in the future we will be waiting for this to come to the states and will not be coming back to China unless we see major major results. Which I am still hoping and praying for. But I need to have patience because I know it will take awhile to see what the true outcome will be.
I do not want anyone to worry at home. I still feel o.k. about everything or I would definately pack up and come right home. I just want other parents who are reading the blogs to be more prepared than I was about what to expect. Pray for us and all the families here and I will try to be more positive next time.
11 comments July 25th, 2008
