1 Week Down
October 10th, 2008
Hi everyone,
Yesterday (thurs) went really well with OT & PT. He got to stand up in a machine today and play catch with Owen, his therapist, he loved that. I can’t imagine what that must have been like for him. He’s never stood up and played ball before. He told me that he felt stronger today, and I watched him walk around the bed holding on. The bed’s are really low to the ground here so that made it easier and it was like when a baby first starts to pull himself up to the couch and sidesteps along it. But I haven’t seen him do that in a long time. So today was an awesome day for him. When he was having his IV Treatment on Wed. he asked the nurses to please hurry up so he could walk down the stairs. The IV room is upstairs so he wanted to walk right out of the room and down the stairs. It was kind of cute, yet sad. But he understands he’s just very hopefull like we are. I think his first Spinal will be on Mon. from what the nurse’s were saying. We will have a free weekend, we have some plans to do some sightseeing. Talk to you soon.
Sharon
Entry Filed under: sma,Uncategorized
17 Comments Add your own
1. Chris, Nicole, Devin, Trenton, & Carter | October 10th, 2008 at 9:50 am
Hey Brandon, hope everything is going well and it’s great to hear your feeling stronger. Just wanted to send you a short note from all of us to let you know we’re thinking about you and can’t wait for you to come home. Keep working hard and be strong.
2. Dody | October 10th, 2008 at 10:37 am
my prayers are with you. I am so proud of you. I don’t know if I could have done what you are doing. You go girl. Dody
3. Chad | October 10th, 2008 at 10:44 am
Hi Sharon, please tell Tina to tell Brandon his cousin Chad and Kayla and Colton, Cooper, and Cody miss him and love him. He has escalated right to the top of there prayers list of people at night. “God bless Mommy and Daddy, Angie, Gramma, Brandon in China….. it is so cute. We are so hopeful, we will be following your blog, take care
4. Josh Johnson | October 10th, 2008 at 12:49 pm
keep the spirits high. the human body is a miracle all its own. mind over matter or so they say will when out. know that we are back here thinking of all of you, good luck!
5. Aunt Ellie | October 10th, 2008 at 5:23 pm
Brandon,
You are like “superman”…. keep up the good work. It sounds like you are making big progess.. I am so happy for all of you. This is such an awesome feat..The U.S. needs to open thier eyes and legalize this procedure here. Can’t wait to see you all..Be Strong and we are praying for you every day.
Love you,
Ellie
6. Shelby | October 10th, 2008 at 7:32 pm
Im so glad his 2nd day is better then the first!! Sounds like Brandon is having a good time. And i’m so excited for him! Sharon i’m so bored at work i dont know what to do with myself, hurry up and come back cause i miss talking to ya!! Until next time. JCC isn’t the same without you here!!!
7. Lonnie,Gina,Kaylie,Rebecca | October 10th, 2008 at 7:58 pm
Hey you guy’s, just wanted you all to know that we are thinking of all of you and you are in our prayers every day. I can imagine how thrilling that must have been to see Brandon walk around the bed. What a boost that must have been for all of you. Brandon, stay strong and work hard, you can do this! Sharon and Tina, keep the faith and never stop believing, God will do the rest with the help of some very special people. Love you all, we will be waiting for you to come home safe. God Bless you all.
8. Jodi & Doug | October 10th, 2008 at 9:43 pm
Hey Guys
Sounds like a much better day. I have tears just reading this I can’t
imagine how the three of you must fell. Brandon keep up the good work buddy and remeber when they are poking you that if you get to play ball it is all worth it in the end. WE are all so proud of you and how brave you are. Love Jodi
9. Cori | October 10th, 2008 at 11:18 pm
Hi guys,
I am so glad to hear that things are going better. It must have been so exciting to see him walk around the bed. I am so excited to see Brandon’s improvements. I cannot wait for you guys to come home safe. Hopefully Brandon will be able to make standing up and palying ball a regular occurance. Stay Strong Buddy!
We will continue to follow all the progress. Whitney and I are constantly checking for new posts. Keep us updated!
Miss you guys lots.
Cori
10. Uncle Dave & Aunt Robin | October 11th, 2008 at 12:30 am
That is the BEST news! It will be great to play ball with him walking and jumping in Wisconsin! Keep praying and thinking of you. Uncle Dave and Aunt Robin
11. Gloria | October 11th, 2008 at 12:42 am
Great news!! So glad to hear that Brandon had a good day on Thursday. Sharon how is the food? Have you seen any pandas yet?
Enjoy your weekend.
12. Greg, Paula, Amanda and Bryanna Crick | October 11th, 2008 at 2:01 am
Brandon…Keep up the good work. We cant wait to see you again. Our thoughts and prayers are with you.
13. Penny Voegeli | October 11th, 2008 at 5:58 am
Thinking of you and Brandon. You’re in my prayers.
14. Heather | October 11th, 2008 at 6:53 am
Mom and Brandon-
I don’t even know what to say it’s like telling me that he took his first steps. Kinda he did. Anyways I will be over at the house on monday night and I would really like to talk to you and Brandon. I know his treatment is on monday but if you could just call so i could atleast say hi I would appreciate it. Tell Brandon I love him and to keep up the good work. Also tell him that Taylor and Anthony miss him like crazy and can’t wait for him to come home.You’re all in my prayers. I hope you guys have a good weekend. All my love Heather
15. Whitney | October 11th, 2008 at 7:05 am
Hey
I started crying when I read this. i am so excited!!! I can’t imagine the joy that Brandon was experiencing being able to stand up and play catch for the first time. I am so proud of you Buddyboo! I miss both of you like crazy. I can’t wait to hear how your day of sightseeing went. Love You and Miss You!!
Aunt Whitney
16. greatgrandma@grandpa | October 12th, 2008 at 12:51 am
Dad and I want you to know how exciting it was to hear about Brandon walking around the bed. It will just keep getting better and better. I can’t even imagine how it made him feel!!He must have been so happy. Maybe now he’ll be more able to understand how all this can help him. Good work Brandon,keep going and come home soon. Hope you had a lot of fun on your days off.Love you guys.GGpa & GGma
17. ashley, nate, and taylor | October 12th, 2008 at 2:09 am
hey guys,
julie called me on thursday and said you guys were there and it was going pretty good. ron emailed me the blog webpage and main webpage. i got on as soon as i got the email. i was reading all of brandons blog and was bawling like a baby. it just hits so close to home. even tho we dont see each very often and i have never had the chance to meet brandon and he has no idea who i am, please tell him he and all of you are in my prayers, and i think about you all all the time. that is very exciting news that is walking already. julie also said that there was a child there with battens disease. do you know much about that child like what type he/she has or how old they are or how advanced the disease was for them or if its working for them. any glimmer of hope helps these days. taylor is like a prisoner in our home these days, we live in a hundred year old house that is not equipped for him at all he is pretty much limited to 3 rooms in the house since he cant walk… the kitchen living room where he has to sleep because his room is upstairs and he cant do steps and its getting harder and harder for us to carry him up there everynight plus we dont have heat or air conditioning upstairs there is no duct work, and the bathroom which is a struggle for him too. we are trying to find another house but not a lot of options aroiund here that we can afford especially with the medical bills. but were are trying and we try to find the good in everyday. taylor is a happy 5 year old who loves books and loves to smile. he is to the point where he is very hard to understand his words and he only uses about 10 words, he cant tell us if something is bothering him or if he needs something, its just a guessing game. well i hope all continues to go well for you in china and after you return home. please keep me updated. hugs and kisses and tell brandon that god is with him and is working on his miracle. and i want to meet him as soon as i can, him and taylor would have fun playing together. love you all and keep you heads up, it will all work out.
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