His last Spinal
October 22nd, 2008
Well, he had his last spinal today. It went well. He was a little more drowsy than his other treatments. Which was actually better, as it made the time go faster until he was allowed to have anything to eat and drink. His PT went very well again today. He rode the stationary bike again, and we pretended he was racing his sister Taylor, and he pedaled his heart out. He actually wore himself out, he just kept going and going. Just like the Energizer Bunny. He will have one more PT tomorrow and then he has Friday off before we leave. We’re going to have a lot of work to do when we get back home. We will have to set up more therapy sessions. His muscles have improved and we can’t loose that. Owen, his therapist, said his hips are not strong enough to hold his weight, but they can be. And that’s a lot more we had than when we left home. He didn’t have that chance when we left. So I know he won’t walk off the plane, but he can go further in his walker, he can lift his legs off the bed, he can walk around the bed with support assistance and he’s learned how to peddle a bike without using his hands to push on his knees, and he tries to stand on his own two feet, with his feet flat on the ground more. Before we came he had lost most of his ability to keep his feet flat on the ground due to his calf muscles tightening up, and I know there will be more to come in the next few months. So, yes, this trip was worth every penny. We want to thank you all again for all your prayers and keeping us in your thoughts and keeping in touch the way you have. It was great to hear from all of you. We are planning a whole day of fun on Friday for Brandon. We’re going to take him to Polar World and hopefully see some Polar Bears and some Dolphins. He’s been excited about going so we figured it would be a great way to end our trip. We leave here Sat. a.m. at 11:45 (10:45 p.m. Fri. back home) and fly to Beijing, we will leave there at 4:10 p.m. and will arrive at 4:14 p.m. in Chicago. I will continue to keep the blog going to report Brandon’s progress after we get home. Talk to you all soon.
Brandon, Sharon & Tina
Entry Filed under: sma,Uncategorized
6 Comments Add your own
1. Jeff | October 22nd, 2008 at 11:38 pm
Wow! What exciting news. We are very happy for you guys and hope you have a safe trip home. We will call you in a week or two and let you get settled back home. Way to go Brandon you are a brave and inspiring little man.
Jeff, Dee and Evie.
2. Heather | October 23rd, 2008 at 1:04 am
Hey Mom and Brandon-
Sorry it’s been so long since I wrote last. I wanted to tell you what happened today. I went over to your house to get Taylors clothes before I took her to school. I went on here and read the blogs to her she started crying immediately. The only thing that she said right away besides being happy for him was does this mean that Brandon can maybe put his pants on now all by himself. I started crying hareder and just told her I didn’t know. I wanted to let you know also that Anthony walks around my house holding the pic of you and Ron at lonnies wedding saying mama and whimpering. Taylor and I have been counting down the days for Brandon to come home but now she has changed to when Brandon and Grandma come home. I want you to let Brandon know how proud I am opf him and that Taylor and Anthony miss him, so much. I can’t wait to see you guys. Tell him to stay strong and that Mommy is so so so proud of him.
Love-
Heather, Anthony, and Taylor
3. Heather | October 23rd, 2008 at 1:06 am
I forgot to write that after Taylor got done crying she wanted to know when we can go buy her brother a real bike. She is so proud of him for being a big boy as she puts it. Once again love you and see you soon.
4. Letitia Kennedy | October 23rd, 2008 at 10:43 am
That is a wonderful report! Just wanted to say Thank You for allowing us to join in this experience. We have been checking the blog daily. Thank you so much for sharing your journey. We look forward to hearing about more progress in the months ahead.
5. jenny huang | October 23rd, 2008 at 11:27 am
Hi, Brandon and your dear family,
Let me briefly introduce myself. My name is Jenny Huang, I was born and raised in China. We now lived in San Diego. I have a 5 year-old son with SMA weak type II. I am very glad to know that Brandon has made such exciting progress! you and your family are troopers and pioneers. Your experience will definitely help our SMA family. I am so proud of you and hoping that I can hear more experience from you so that someday, I might bring my son to china to have the same treatment.
6. wow gold | March 13th, 2009 at 9:08 am
A man can do no more than he can
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