Archive for December, 2008

Merry Christmas everyone!!

It seems there are not enough hours in the day.  We have received the Electric Stimulation machine from Brandon’s PT.  We have permission to use it for 2 months and then we have to prove it’s been beneficial and they will then sent it thru insurance to see if we can continue to use it.  The day we went to see his PT, Brandon shocked us all.  We were talking and Brandon crawled over to a small set of stairs that was in the room.  The stairs were special made for therapy for children and the steps were about 3 in. in height.  He proceeded to pull himself up by using the hand railings on both sides and then he did something that I have NEVER seen him do, he walked up the stairs all by himself, and he did it 3 times.  His therapists jaw hit the floor as we was just in the middle of discussing his trip to China.  She looked back at me and said, ” What’s all that about?” and I told her, ” that’s China”  : )  So needless to say our appointment went a lot longer than it was supposed to.  She’s going to try and make a good case for us to get the needed extra PT sessions.  Well, I just wanted to give everyone some more good news.  We’re still TRYING to work hard with his therapy at home, but he’s four and he gets real tired of it.  But as we go we try to get a little more creative about it.  Some days it works, others it does not.  I want to wish all of you Merry Christmas and have a Happy New Year. 

Love to all,

Sharon, Brandon and his entire family

5 comments December 22nd, 2008

Brandon update

Hello everyone,

Just wanted to update a little bit about Brandon.  Sorry it’s been so long.  We’re still just trying hard to do his PT at home right now.  Tomorrow we’re going to Univ of WI. to see some new therapists to try and get some more equipment.  We’re trying to get something similar to the electric wave machine they used in China.  Brandon’s doctor has already spoken to them about getting one that they could program so that we can use it here at home.  I’m also going to see if they can prescribe some more PT here in Janesville, other than what he already received thru the school system, which is only 1 hour 2 times p/wk.   He needs that everyday.  But Brandon is doing well, he’s able to get himself into bed now.  Before we left he couldn’t get his legs up into his bed without help and now he’s doing it much better.  He’s still pedaling everyday getting ready to ride his bike next summer.  His Physical therapist noticed an improvements with his leg muscles, she said he could do more for a longer period of time and noticed his calf muscles are not as stiff and he’s able to keep his feet flat on the floor.  So we’re still moving forward hoping and working for more.   Hope everyone had a wonderful Thanksgiving and I’ll talk to you later.

Sharon

3 comments December 1st, 2008


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