Brandon update
December 1st, 2008
Hello everyone,
Just wanted to update a little bit about Brandon. Sorry it’s been so long. We’re still just trying hard to do his PT at home right now. Tomorrow we’re going to Univ of WI. to see some new therapists to try and get some more equipment. We’re trying to get something similar to the electric wave machine they used in China. Brandon’s doctor has already spoken to them about getting one that they could program so that we can use it here at home. I’m also going to see if they can prescribe some more PT here in Janesville, other than what he already received thru the school system, which is only 1 hour 2 times p/wk. He needs that everyday. But Brandon is doing well, he’s able to get himself into bed now. Before we left he couldn’t get his legs up into his bed without help and now he’s doing it much better. He’s still pedaling everyday getting ready to ride his bike next summer. His Physical therapist noticed an improvements with his leg muscles, she said he could do more for a longer period of time and noticed his calf muscles are not as stiff and he’s able to keep his feet flat on the floor. So we’re still moving forward hoping and working for more. Hope everyone had a wonderful Thanksgiving and I’ll talk to you later.
Sharon
Entry Filed under: sma,Uncategorized
3 Comments Add your own
1. Egill Helgason | December 1st, 2008 at 11:26 pm
Hi
Great to hear Brandon is getting better !
Best regards from Iceland,
Egill Helgason
2. steve | December 4th, 2008 at 12:09 pm
my son kayden has sma type 1-2 he is 9 months old we are very interested in this theropy,but china just seems too expensive if you would not mind sharing some info on prices or other spots in the world too go for this please contact us.thanx
3. jenny | December 12th, 2008 at 2:07 am
I am so excited about Brandon’s positive results. My son has type II SMA, we are considering to have the similar stem cell treatment for him in china probably next May. We have relatives in China so that is a big plus. I really like to contact with you about other issues and follow Brandon’s progress. Thank you very much!
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