Merry Christmas everyone!!
December 22nd, 2008
It seems there are not enough hours in the day. We have received the Electric Stimulation machine from Brandon’s PT. We have permission to use it for 2 months and then we have to prove it’s been beneficial and they will then sent it thru insurance to see if we can continue to use it. The day we went to see his PT, Brandon shocked us all. We were talking and Brandon crawled over to a small set of stairs that was in the room. The stairs were special made for therapy for children and the steps were about 3 in. in height. He proceeded to pull himself up by using the hand railings on both sides and then he did something that I have NEVER seen him do, he walked up the stairs all by himself, and he did it 3 times. His therapists jaw hit the floor as we was just in the middle of discussing his trip to China. She looked back at me and said, ” What’s all that about?” and I told her, ” that’s China” : ) So needless to say our appointment went a lot longer than it was supposed to. She’s going to try and make a good case for us to get the needed extra PT sessions. Well, I just wanted to give everyone some more good news. We’re still TRYING to work hard with his therapy at home, but he’s four and he gets real tired of it. But as we go we try to get a little more creative about it. Some days it works, others it does not. I want to wish all of you Merry Christmas and have a Happy New Year.
Love to all,
Sharon, Brandon and his entire family
Entry Filed under: sma,Uncategorized
5 Comments Add your own
1. è‰ä¸›ï¼Œé&hellip | December 22nd, 2008 at 12:43 pm
[...] use it for 2 months and then we have to prove it鈥檚 been beneficial and they will then sent it Read More|||Growing the Army, particularly while it is at war, is a tremendous challenge. As such, he said it [...]
2. Miss Deanna | December 22nd, 2008 at 8:37 pm
That is awsome news!!!!! Keep going Brandon!!! Show them what you can do!!!
May Santa treat you, Taylor and your little brother extra well this Christmas you deserve it!
Happy Holiday’s
Miss Deanna
3. Cory Bladorn | January 13th, 2009 at 1:47 am
I am very happy for you all and hope things keep improving. I am a mom also in the Janesville area with a son with Duchenne’s Muscular Dystrophy. We just read your article in the Gazette a few weeks ago and this is the first we have heard of anyone going to China for treatments, let along success. Have you heard of anyone with DMD recieving treatments and can you tell me how you found out about this and how you got started?? We are very interested in finding out if there is any hope for our son. You can email me at your convenience or call me at 608-876-6383 (just outside Footville and not long distance from Janesville phone). Any information you can give us would be most helpful. Thank you.
Cory Bladorn
4. Suraya | February 27th, 2009 at 9:06 am
Hi, it’s wonderful to hear of Brandon’s progress. I have a daughter named Sofia and she is 5 years old. She is diagnosed to have SMA variant i.e not the typical SMA 1,2 or 3. Brandon’s story has given me much hope for Sofia and I wish to know more about it from you. I am from Malaysia and hope that you can in touch with me via my email add above. Hope to hear from you soon. Take care.
5. Pringle | March 25th, 2009 at 5:05 am
Hello. My daughter was recently diagnosed as Type 2. Would you be willing to talk to us about your experience in China? If so, can you please email me?
Thanks!
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