Good Evening!
April 19th, 2008
Hello Again! I guess I should clarify my blog yesterday. The doctor does think that the stem cells will help everything- he just won’t get the results that he would have 5 years ago. We knew that already, but it just hurts a little to hear it again, especially when we have been told from all of our neuro’s from day one that stem cells were not an option! We can only pray for the best results we can get at this time. ANY improvement, no matter how small, will make this trip 100% worth it!
On a lighter note, we had a pretty fun day today! Brayden was so sore this morning from PT that he couldn’t even move! We told the therapist that he needed the day off! Poor kid- I know he is probably thinking he is getting tortured! Jason had to make a run to the store this morning, so the kids and I did laundry. Not too eventful until a nurse and I scared the pee out of each other! They have a really soft nature, so when they knock, it is very hard to hear them. I was putting away some laundry, and turned around and there she was! It was instant reaction for me to scream a little, and I think I really scared her bc she screamed too! She kept saying- So sorry, so sorry! Glad she didn’t walk in to me be being naked or something! Jason and I decided to brave the local scene, and take the kids for a picnic in the park. It is really beautiful. Lots of fountains, flowers, and little boys doing their business just about anywhere! Yep, they will just whip it out wherever they feel like it! It really made us feel at home!!! Heck, the little kids here have slits in the bootie part of their pants so they can just squat when they have to go. Tracie, I think I will bring some home for Kory! When we returned, Brayden had accupuncture. I think he is starting to really like it! He was awesome! When we got back to our room, the cleaning lady was there. She has made friends with Brylie. Brylie has taught her some English, and she taught Brylie how to say good-bye in Chinese (shay-she-in). Very cute! The lady calls the kids Barden and Barley. We got adventurous tonight and ordered chicken strips from what they call a bbq place. From what we heard, their bbq consists of something that gives you the poops! Luckily no one has had trouble with the plain strips, so we’ll see!
We hope to go to the ocean tomorrow, so probably no blog until Tuesday, since Brayden has his next injection on Monday. Thank you all again for the comments! We are suprised daily by the outpouring of support! I didn’t even know so many people knew that we were coming!! It is such an amazing feeling to know that you all are pulling for us! Hope you all have a great weekend!
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14 Comments Add your own
1. Brandy Russell | April 19th, 2008 at 10:26 pm
Hello Johnson family! So glad to read the blog today, it clarified a lot. Prayers are working and will continue to guide you all through this! Hope you enjoy the ocean and get some relaxing time! Love you all!
Love, Brandy
2. Momma Sue | April 19th, 2008 at 10:37 pm
Great news!!!!! When I told the kids that I was sending you a package and ask if anyone would like to send something, Craig emailed me back
3. becky | April 19th, 2008 at 11:00 pm
Lorie, it is 10:00 on Sat. and we just went and picked up your car. Ryan thinks it is pretty cool. You did not have to have it so clean. I think it might have taught him responsibililty to have to do something. The promonade is at 6:00. We are reading your blogs everyday and we say prayers for you guys on the way to school every morning. I will take pictures of your hummer and ryan to show you when you get back. Love you lots, The martin girls.
4. Amy martin | April 19th, 2008 at 11:17 pm
Hey! I have been reading all of your comments and my teachers let me out of class so i can go read what you have posted its SWEET!!!! SO KEEP POSTING!!!!!
5. Sharon Johnson | April 20th, 2008 at 12:59 am
Great to know things are going so well. Also that you are finding others to talk a little English with. That has to help a little bit. Thinking/praying for you all…have a good weekend… love, hugs and kisses for all of you, Nonnie
6. Grady | April 20th, 2008 at 1:32 am
This is Grady’s comments for Brayden. I think he’ll understand!
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7. Mercer clan | April 20th, 2008 at 1:38 am
Hope you’ve had a great weekend! Enjoy the time together!
We are keeping up to date on your trip. Miss seeing Brayden at school! This trip is part of why he chose you! All of our prayers and love – Christy
8. Lisa | April 20th, 2008 at 1:40 pm
Good to hear a little clarification. Mom and Dad are going home tomorrow, Sunday. We have enjoyed having them here with us. Nolan turned 14 last Thursday. Can you believe it? He is about to be done with the 8th grade and will be in high school in the fall. Wow, how time flies. Another reason God has sent you to China. Better now than later and no more what ifs. He is guiding you down the right path and you just keep looking forward. We all love you and are praying daily.
Love,
LIsa and family
9. David Groves | April 21st, 2008 at 12:09 am
Hey Johnson’s, I’d been having trouble finding this blog site, but stopped by Tracie and Kory’s yesterday and they filled me in on how things were going. What a great way for you to keep everyone posted on Brayden’s progress, and for us to send you our support. You will continue to be in my prayers, and I can’t wait to read about more updates.
David Groves
10. the cobb family | April 21st, 2008 at 3:25 am
Hi all just a line to let you know we are thinking of you. sounds like you are getting to enjoy some of your visit there thats good. There are alot of people back home praying for all of you most of them you dont even know. Every one is really pulling for you and your really brave choice. We love you and will keep praying for you. love the Cobb family.
11. Brayden's Aunt TT | April 21st, 2008 at 8:19 am
This is more of a message to those of you who are reading Brayden’s blog daily! I would like thank each of you for the support and prayers each of you continues to send to Brayden and the Johnson family. There is not one day, or one trip to the grocery store that either myself, Karrie, or mom aren’t stopped and asked how Brayden is doing. Lorie is in awe everyday when she gets online and sees more comments and more prayers from each of you. She told me tonight as we talked online that she hates that she can’t reply to each of your comments. Unfortunately the blog just lets her see your wonderful comments and post one bulk blog. I think we all agree that Lorie and Jason are amazing parents, and with your continuous support and encouragement, it makes them feel even more confident that they have made a wondeful choice in providing Brayden with this journey. Thank you all again.
Burgans and Newberrys
12. Teri Ruttgen | April 21st, 2008 at 11:26 am
Oh my gosh. I’m warn out just reading the blog. You guys are all such troopers. Love the pictures Tracie forwarded especially the ones with Brayden and his probes!!! You are all in our prayers.
13. Amy Johnson | April 21st, 2008 at 11:02 pm
Slits in the bootie part?! That’s just crazy!! Love the pics ~ thanks for sending them! I love the one of Brylie kissing Brayden ~ too cute! Tell “Barden & Barley” we love them
Take Care!!
Aunt Amy, Uncle Chris, Kaitlyn, Tyler & Seth
14. debbie page | April 29th, 2008 at 3:12 am
Lori, Jason Brayden and Brylie
Sounds like you having some great results. I am so happy for you guys. Look forward to hearing more good news. What an adventure… give Brayden a hug and high five.
you are in my thought and prayers
debbie
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