Brayden’s CP Blog

Halfway there!

April 27th, 2008

Sorry I haven’t blogged in awhile.  The internet was down for a couple of days last week, so I couldn’t really post anything.  Friday morning, it was therapy as usual.  Brayden was a bit sore, but Tom his new therapist is very diligent.  I like that about him.  It is like he is in total concentration when he works with Brayden.  They BOTH struggled through, and again, Brayden fell asleep in the stander.  That is becomming the norm! 

We, along with Cindy and Ching, had the pleasure of planning our first “going-away” party for Kenneth, Kathy, and Bobbie from California and Dennis and Tanya from New Zealand.  I had to make a poster to announce the party, so Jason took Brayden to electro-therapy and Brylie and I made a poster.  I had to laugh- when I was finished, we carried it down to hang it on the nurse’s station.  On the way, I met Dr. Ma, and he looked at the poster and asked me if Brylie made it!  I said, “No, I did.”  He just said “Oh,” and nodded.  I’m not sure if he maybe didn’t mean to ask it that way or if he was just not at all impressed with my artwork.  I chuckled about it everytime I looked at that dang poster! 

Anyway, at 1:30 the nurse came in to start Brayden’s IV for his treatment.  It was a BREEZE!!!  I love IV treatments!!  Well, you know what I mean!!  In comparison to the spinal anyway.  That little nurse came in and had that IV going in no time!  Seriously, Brayden didn’t even make a peep.  I climbed in bed with him and we snuggled up and watched The Runaway Jury while he got his cells.  Very comfortable.  I wish we could start the IV in the room before every treatment- he does so much better when we are there to comfort him.  That would also make the OR situation not bad at all!  After about 30 minutes of fluids, he was good to go!  A little bit tired, but not bad. 

We decided to try our luck with the pizza delivery again.  We ordered pepporoni, and made sure that Jack looked at the menu real close!  While waiting on the pizza, I had to make a run to the RT Mart to get things for the party on Saturday.  Luckily Kathy rode along with me.  I am kind of a chicken to take a cab by myself.  I know I would say the wrong thing and wind up at the other end of the city!!  After a quick whirl through the RT, we were headed out- or so we thought!  We got about half-way to the cab, and Kathy says, “Hey, I think I need an ice cream from KFC.”  In my mind I was like, “Oh my gosh!  THANK YOU, THANK YOU!!”  However, I replied with, “Oh, okay.  I’m sure Jason and the kids would like it if I brought them some home!”  I’m so sly…..  So, we get in the cab, and I am feeling on cloud nine!  It is Friday night, we have pizza on the way, ice cream sundaes, and Budweiser beer in the fridge.  What more could we ask for!  Luckily Jack the intern and Glen from UK helped us with the groceries to my room.  I open the door to our room, and about DIED!  Not kidding!  It stunk really bad in there, and Jason has this not so good look on his face.  He says to Jack, “Well, we got the wrong pizza again!”  Poor Jack turned every shade of red possible.  I have to tell you, this is seriously the nicest guy you will ever meet.  He was so embarrassed and upset.  I opened the box to look at it, and the crust part was gone and all the toppings had been scraped off.  When everyone left the room, Jason says “I just couldn’t do it.  It smelled like fish.  I just couldn’t choke it down this time!  The kids and I ate crust and left the toppings.”  You know it is bad when Jason won’t eat it.  We have since figured out that the seafood pizza is right below the pepperoni on the menu.  I think maybe we were pointing to the wrong line when we ordered.  So it wasn’t pork or even dog that we had last time, it was fish!  Lovely!  We still had ice cream and beer.  Can’t get more American than that!  We got the kids all settled in for bed, and I prepared myself for my very exciting Saturday of going with Bobbie to the knock-off purse place!  So exciting!  I was practicing my bartering skills in my sleep!!!  More later….

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