4th one a breeze!
April 30th, 2008
I am so pleased to report that this spinal went down with no problems! The same little nurse, Nini, started his IV in the room with both of us here. I don’t even think Brayden felt it! She is AWESOME!! As a matter of fact he had a smile on his face the whole time. Maybe the awful sound of me singing “Honkey Tonk Ba Donka Donk” outweighed the pain of the IV! Brylie, however, did not like Brayden getting an IV one bit. She was scared and started crying a little bit when the nurse started working on him. Kind of sad, really. We then carried him to the OR, where we were met by that wonderful man that I so dearly love…ARGH!!! The very kind anesthesiologist came right in and gave him the meds to make him tired, and away he went. I didn’t even cry this time! I think Jason was proud of me, and the OR man was a little bored with us this time!! We did start to get a bit nervous bc it usually takes about 30 minutes from starting IV to bringing him back to us, and 40 minutes had passed and still no Braydo. We didn’t have a translator with us, so I knew it would do me no good to go in and ask OR man if he was okay! Finally about 5 or 10 minutes later, they brought him out. Dr. Ma said that he had a hard time finding an injection site. I’m not really sure what that meant, but I’m worried that they had to do a lot of poking around. Not sure what the risks are involved with that. I would like to know how the docs would know if he has any leakage of spinal fluid or any other problems since he can’t tell us if anything hurts. I’m not sure I even want to battle with trying to ask that question. Why in the heck they didn’t offer Chinese in high school, I will never know!!! We are now about 3 1/2 hours into our 6 hours of laying flat. He did a really good job waking up this time, so it has been quite a battle trying to keep his head down. I think we are going to talk to the dr. about some sleeping meds just to decrease the risk of headache in the morning.
Thank you all for your prayers! They are working wonders for us! We are more than half-way now, so it won’t be long! Everyone says the last two weeks go pretty fast, and I hope they are right!!
Could you all say a little prayer for Brylie- she is sooo bored! She has been such a great sister, and has done really well for not having any toys here to keep her busy. Bless her heart, she probably thinks she is stuck here forever!
Love and miss you all! Jason, Lorie, Brayden, and Brylie
Entry Filed under: cp,Uncategorized
14 Comments Add your own
1. Brandy Russell | April 30th, 2008 at 7:44 pm
Hey guys! Sounds like Brayden is still quite the little trooper! I am so happy to hear that he, as well as you, tolerated this one better. That makes it much easier I am sure! Glad to hear things are going good and I pray that they continue to. Talk to you soon! Love you all!
Love, Brandy
Deuteronomy 31:6
Be strong and courageous. Do not be afraid or terrified because of them, for the LORD your God goes with you; he will never leave you nor forsake you.”
2. Erica | April 30th, 2008 at 8:55 pm
Brayden is quite the little stud…glad to hear that mom took this one better!!! Take care….we’re all counting the days for you all to get home!
Love Ya,
Erica
3. Uncle Craig | April 30th, 2008 at 9:09 pm
Hey guys
sounds like things are going very well. we all miss you very much and look forward to your coming home. You wouldnt believe the number of people that follow your blog everyday, not just friends and family but complete strangers as well. The amount of support and people praying for you is unbelievable. Hang in there sounds like the plane ride home is near.
give everyone hugs for me and tell braydon that the old 67 should be painted by time he gets home and were going to need new pictures.
Lots of Love
Uncle Craig
4. Tracy, Shawn, Hannah, and Makenna Andrews | April 30th, 2008 at 9:14 pm
I am not a doctor, but in Shawn’s experience with his back surgeries last September, the neurosurgeon told us that if he got a severe headache when he sat up, dizziness, and throwing up that he was leaking spinal fluid. And sure enough he was. Don’t know if that helps any, but that’s how it was for Shawn. I know the laying flat part is so hard. Shawn had to do it for two weeks with each surgery, and he’s a grown up, not a little kid, so he is supposed to be more patient. Wrong! Tell Brayden to hang in there. Take care!
5. Lori Johnson | April 30th, 2008 at 9:37 pm
Hello again to everyone! I woke up at 2:30 am, with a blonde little girl staring at me, and I couldn’t go back to sleep. I was laying awake thinking about what might be going on in China. I’m glad things went well this time, and the great news is you have another treatment behind you. Keep your head high and you each day that goes by brings you closer to Kansas soil! Love you all.
Hugs and kisses from us to you!
Wade, Lori, Shayla, KJ and Avery
6. Momma Sue | April 30th, 2008 at 10:48 pm
Glad to hear that this treatment went well.
To bad that you don’t have a little box you could talk to in English and it come out as Chinese.
Give Brayden a big kiss from me for being sooo brave. It is so touching to hear how Brylie wants to protect her big Bro.
Love and Prayers
Mamma Sue and Papa Jerry
7. Kitten Gilmore | May 1st, 2008 at 1:09 am
Hi, I so glad that every thing is going well. I miss him alot. I very happy that he is doing so well and responding to the treatments. I wish you all well, and I will keep you all in my prayers. Everyone says hi.
W/Love
Kitten Gilmore and rest of class
8. David Groves | May 1st, 2008 at 2:13 am
Hey Johnson’s, glad to hear things went failry smooth. I love to read the updates on Brayden’s progress! My thoughts and prayers continue with you. Lori, I had to laugh out loud though about the comment on Chinese class being offered in highschool. I’m sure we all would have signed up!! If we knew then what we know now, right?
Take care and God Bless.
9. Abby (mesplay) Adamson | May 1st, 2008 at 3:08 am
I am glad to hear that Brayden is doing so well with everything. I hope that everthing continues to go as well.
10. Lisa Brown | May 1st, 2008 at 5:08 am
Greetings from Kansas,
I finally got the link from Julie B. Spent yesterday cathing up. And Lorie, I did as you asked, I kissed my washer & dryer, never again will fail to appreciate it.! Amy S. emailed album 1 & 2. I really enjoyed them. From your blogs it sounds like you’ve been around the world several times over with alot of frustration. You guys hang in there! I sent the link on to Butch & Mary with a note to Macy that I bet Miss Lorie would love to hear from you. If there is anything we can do from here please ask! I’ve been thinking of you all everyday. What a wonderful thing to be able to communiocate with everyone at home. Your Mom told me about the webcam. Thats great too! It’s happy news to hear that Brayden has been able to tolerate everything they have been throwing at him. We are praying for you!
Love, Lisa & Jim
11. Amy Johnson | May 1st, 2008 at 10:59 am
So glad to hear that everything went smooth
Brayden you are such a trooper!! Poor Brylie 
NO TOYS!! Give her some chop sticks ~ I bet she’d like poking people w/ those! 
HUGS & KISSES!!
Talk to you soon~
Aunt Amy, Uncle Chris, Kaitlyn, Tyler & Seth
12. Trev- | May 1st, 2008 at 11:07 am
Hey all!!! So glade everything worked out so well today!!! Proud of ya lori for not cryin!! Yep more than half way there such a great thing to know…can’t wait till you all get home!!!! Keep in there brayden…love ya lil man!!!
Love ya all!!!
Trev-
13. Stacy (Maxton) Shepherd | May 1st, 2008 at 12:23 pm
Hi Johnson Family, It sounds like things are going good! I am sure you all are just ready to come back home and see everyone and I know everyone is ready to see you! You guys are awesome parents and I am so proud of you for what you have given your son! Just know that what you are doing is the best you can do as a parent for your child. I read your apology. and I just have one thing to say, you are across the country from your family and friends with to small children and having to go through all this with Brayden. I would say you have way more important things to do then have to apologized to someone! You just keep your heads up and do and say what is in your heart! Lorie you are an amazing women/mother!!
p.s. I agree with Craig! lol
14. Sharon Johnson | May 1st, 2008 at 11:55 pm
Just want you to know I am still thinking of you.. Brylie will feel like Christmas all over again when she gets back to her toys. Give Brayden an extra hug for me for being such a big boy and keep the faith. love to you all, Nonnie
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