Archive for October 21st, 2008

Tuesday, Oct 21st. Day After Injection

Hello, here we are Tuesday evening.  Let’s see, this morning was not a good morning for Brooke. She is not her self. She is tired and not eating.  She is not feeling good.  I canceled her therapy today because she wasn’t feeling good and I knew she wouldn’t even participate.  She did eat a little lunch and some dinner.  She started feeling good and full of life at 8:30 this evening.  I did have the doctor check her throat just in case in the morning and she was fine.  We believe that is just a reaction from the stem cells.  Did I mention that the doctor’s examined Brooke and they said that Brooke’s muscle tone has decreased a little.  It did seem that Brooke was sitting up good today unassisted while we were playing with the kids. 

We did not do much at all today.  We did take Brooke out to the common area were all the kids were playing and Brooke was having a ball.  There was this remote control car that this little boy Brandon had and Brooke loved it.  It lit up and did all kinds of flips and Brooke laughed and laughed.  When it was time for Brooke to let Brandon have a turn, she threw a fit.  Typical of Brooke when she really enjoys something.

Today I met out neighbor Mike, he is really nice.  He has Ataxia and his from New York.  He says that he has already seen a little improvement in is speech and walking and has only had one IV injection.  That is great news for him.  Mike has traveled here by himself.  He is married and has 4 children at home in NY.  I also met Cindy from Florida with her son and he has Optic Nerve disorder.  He has an under developed optic nerve.  She is also by herself and very young also very nice.  Linda and Thomas from Canada are still here but leave Friday.  Linda was here about a week before us.  Thank you Linda for the use of your broom and headphones.

4 comments October 21st, 2008

5TH INJECTION, MONDAY EVENING, OCT. 20th

Well here we are on our 5th injection and only an hour and half into the recovery from it.  Brooke is really hungry right now and thirsty.  If you mention the words “hungry” or “thirsty”, she begins to cry.  I can give her something to drink at 6:00, thankfully that is only 35 minutes away now.  She is doing great. She is trying to lift her head alot.  We did not give her any valium this time.  Not much to say.

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