Tuesday, Oct 21st. Day After Injection
October 21st, 2008
Hello, here we are Tuesday evening. Let’s see, this morning was not a good morning for Brooke. She is not her self. She is tired and not eating. She is not feeling good. I canceled her therapy today because she wasn’t feeling good and I knew she wouldn’t even participate. She did eat a little lunch and some dinner. She started feeling good and full of life at 8:30 this evening. I did have the doctor check her throat just in case in the morning and she was fine. We believe that is just a reaction from the stem cells. Did I mention that the doctor’s examined Brooke and they said that Brooke’s muscle tone has decreased a little. It did seem that Brooke was sitting up good today unassisted while we were playing with the kids.
We did not do much at all today. We did take Brooke out to the common area were all the kids were playing and Brooke was having a ball. There was this remote control car that this little boy Brandon had and Brooke loved it. It lit up and did all kinds of flips and Brooke laughed and laughed. When it was time for Brooke to let Brandon have a turn, she threw a fit. Typical of Brooke when she really enjoys something.
Today I met out neighbor Mike, he is really nice. He has Ataxia and his from New York. He says that he has already seen a little improvement in is speech and walking and has only had one IV injection. That is great news for him. Mike has traveled here by himself. He is married and has 4 children at home in NY. I also met Cindy from Florida with her son and he has Optic Nerve disorder. He has an under developed optic nerve. She is also by herself and very young also very nice. Linda and Thomas from Canada are still here but leave Friday. Linda was here about a week before us. Thank you Linda for the use of your broom and headphones.
Entry Filed under: cp,Uncategorized
4 Comments Add your own
1. Lynn Ploss | October 22nd, 2008 at 12:21 am
I’ve been reading the blog and find it very interesting and insightful. Also, sounds as there is some progress which is wonderful. Brooke (and her mother and grandmother) are incredibly courageous to be undertaking this journey. Waiting to hear more.
2. len & emma | October 22nd, 2008 at 7:57 am
so happy to read that you guys are doing Ok there. We got worried when there was no blog for a few days. We have been thinking of you guys daily….so as a tribute to you three couragous women we went out for Chinese dinner on Friday. We went to P.F. Changs….and guess what we ordered? Yes. we ordered the little pork filled dumplings. Everyone liked them except me-so I decided to pour alittle sesame oil flavoring on mine. Well…..some funny patron who sat at that table before us had unscrewed the cap…my poor dumpling was swimming in spicy sesame oil…. YUK !
The pictures you have sent are beautiful…except for the “dog” in the market picture. Well girls, sleep tight. till next time.
len & emma
3. debbie | October 22nd, 2008 at 9:46 am
hey girl glad to hear you see some improvement in my littlegirl .haven’t heard from you in awhile was wondering how you guys were.did you get my message about a refridgeratormagnet to bring one home that says china?I MISS YOU TERRIBLY BUT I KNOW THIS IS GOING TO BE SO GREAT FOR HER .STACI SAYS SHE TALKED TO YOU the other day ,she said it was nice to talk to you.halloween is fast approaching and the little ones are so excited. savanna keeps sending brianna webkinz stuff.letters presents because she is missing her.11days until you come home but who’s countingha!ha!well i worked a double today and i’m tired so good-bye for tonite and i will talk to tomorrow. love and good thoughts debbie
4. diana klein | October 22nd, 2008 at 9:53 am
Glad to hear you guys are all doing Ok, was getting a little worried when you didn’t write for a few days. I am sure you are all getting a little tired and home sick! Can’t wait to get working with Brooke again! I really miss that beautiful face and that angelic smile!!!
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