We are doing great!!!

August 30th, 2007

I am sorry it has been so long since I have posted an update. I will try to remember the “major” things since the last posting. Brooklyn’s 4 point crawling continues to get better and better – she is all over the house now. She is pulling herself up on furniture and is cruising along furniture also. We were able to borrow a walker from a friend of mine the last weekend in July – boy did she LOVE that. We could not let her see it because that was all she wanted to do. She finally got her own walker about 2 weeks ago. She is really all over the house now. She has the biggest smile when she is up and walking – it is great to see. We have also had her in speech therapy this summer. She is doing really well with that also. She is saying hi, bye, mommy, daddy, ya and no. She will also tell you what the cow says – when she wants to. She is able to point to her ears, her nose (sometimes) and her mouth (sometimes). She can point to her socks, shirt and hair.

I am so excited by everything she is doing. Her therapists her are very pleased with her progress and believe that if we hadn’t gone to china – she wouldn’t be as far as she is now. She is doing very well at therapy – the continue to work on walking, cruising between pieces of furniture, crawling and pulling to standing. They think she will walk independently at some point, but we don’t know how long it will be til she gets there. She will continue her 5 therapies a week through our medical insurance and are hoping to get two days a week through the school. It keeps me busy but the more we can do for her the better!!! She is usually a happy little girl but she has her moments (usually at home when no one else is around). She always has a smile for everyone and her curly hair is getting long!!!

Sydney will be starting school on the 12th and will be taking ballet and gymnastics classes. She is such a great big sister to brooklyn and such a trooper going to all of her sisters therapies. I couldn’t ask for a better kid – she is such a good helper!!!!

I miss everyone from china – the medical staff and everyone I met there. It truly was an experience of a lifetime and I would do it again in an instant. I am so glad we went and that I was able to convince Scott to go. I hope that one day people will have the ability to try this treatment here to help make their lives a little better – a little more manageable – a little more “normal” (whatever that is).

I will try to keep this updated better in the future.

Heather

Entry Filed under: cp

3 Comments Add your own

  • 1. Jun and Edita  |  January 1st, 2008 at 12:11 am

    This is inspiring. We are parents of a 3 year old boy with spastic diplegia CP. We plan to go to HangZhou in 2008 for stem cell treatment. We would love to speak with you over the phone if possible. Please let us know via raulandedita@yahoo.com. We are eager to hear back from you. Thank you in advance.

  • 2. Nathalie Carr  |  January 30th, 2008 at 9:36 pm

    Hi

    I have a young daughter (7yrs) who has CP and we are looking to go to HAng Zhou. I have been looking through your blog and am impressed.
    You have not updated it in a while, could you please tell me if you have seen anymore improvements since China?

    I look forward to you reply.

    Nathalie

  • 3. Marco Astolfi  |  May 20th, 2008 at 11:34 am

    Hi, congratulations for the improvements.

    I have a question. What is the best way to go from Shanghai to Hangzhou??

    Thank you.

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