Sooo excited to be HOME and CHAN is doing great!!!
January 8th, 2009
Hello Everybody,
Sorry I have not wrote sooner since we have been home it has been busy alot of catching up to do!! The trip home was very well we had alittle problems in LA with a delay and problems with the plane, but we made it home safely it felt so good to get home and see my BIG BROTHER!! Since we have been home Chans physical therapist was very amazed with Chandlers muscle tone, he says he sees that his eyes are focusing better and was very pleased with how Chan was grabbing toys. I am already excited with all the results we have had from the stem cell treatments, and am excited to see what the future brings for Chandler. Chandler has been so a strong and brave little boy and we are all so proud of him! Everybody at the Hospital was very nice and we are very greatful to them, and hope to see them all in the future. If we are able to come up with more money we will definately bring Chan back for treatments in the future.
Talk to Everybody Later, Thank you for you support!
Entry Filed under: lissencephaly,Uncategorized
5 Comments Add your own
1. Katie Corkern | January 22nd, 2009 at 1:27 am
Hi Krisin and Chandler,
I just found your blog and I am excited to hear the good news. I was wondering what changes have yall seen since being home? We too took our son Connor to China last summer and he has schizencephaly (similar to liss) and I was just wondering about your sons progress? What eye condition does he have? If any?
Connor has ONH and was completely blind. My email is katie_corkern@yahoo.com
Thank you so much!
Katie Corkern
2. keegan | January 30th, 2009 at 5:10 am
Glad to hear Chandler’s doing so well. We hope his progress continues. Keep posting so we can keep updated. Tell your mom we said hi too!
Quinn, Kerry, Keegan, Dawson, and Ethan
3. barbara | March 7th, 2009 at 12:24 am
Hello
We are a parents of an italian child with lissencephaly.
We would like to do the stem cell treatment in China and we would like to know how today is Chandler, which improvements he has obtained. Chandler had seizures prior to treatment? Now he has seizures? the improvements are lasting and permanent in time?
thank you for your reply.
Barbara
4. elisa | March 7th, 2009 at 1:09 am
hello,
I’m Elisa from Italy. I’ve a 4 years daughter called Alice with lissencephaly. I’m interested in the treatment with steam cells. Please, if you want, I’d like to know more details about Chandler and his condition before and after the treatment,for ex. if he’s going on having seizures, if he’s getting some drug and all the things you want to tell me.
I thank you so much and hope to hear you soon.
Bye.
Elisa
5. Kerri | March 15th, 2009 at 9:23 am
Hi There,
I have a 16 month old daughter with lissencephaly. We are looking into stem cell treatments for Billee and wondered if you could e mail me please. How old is your son?
What improvements have you seen?
Does he have a website?
Any info would be great.
Many Thanks
Leave a Comment
Some HTML allowed:
<a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>
Trackback this post | Subscribe to the comments via RSS Feed