Second Round of Liquid Gold
April 11th, 2011
It’s been a very slow weekend for us because all the shops bar a few have closed down. That’s a real shame because we were really looking forward to getting out and having a look at all the new shops……ooops but good news the Steak House we used to go to is still open. We are going to try that with some new families maybe tomorrow. Connor had his 2nd lot of Stem Cells today but he’s not noticing any real change but he is accurately telling where the light is coming from and which direction when the Doctor shines the light in his eyes. He really doesn’t like the new acupuncture treatment which involves needles all around his eyes and then attached to little electrodes which give off a mild pulsing sensation. I ask him to be brave while secretly thinking there is no way I could do that, but we still look toward the bigger picture which hopefully he will one day see. Talk tomorrow
Entry Filed under: lebers congenital amaurosis
7 Comments Add your own
1. Renae Craft | April 12th, 2011 at 9:07 pm
I Tracey and Connor I don’t think i would be very brave if they were sticking needles in my face so congratulations to Connor for being so brave. Sam says to say hello and he is a bit worried about if the easter bunny will find Connor over there, i hope he does because he sure deserves lots of yummmy easter eggs. Glad you had a better trip over except for the confiscation of your duty free {was that perfume ha ha}. take care look forward to your updates. Renae
2. connorwink | April 13th, 2011 at 8:42 am
Hi Renae you can let Sam know we have the Easter Bunny sorted. I wouldn’t be as mad if it was perfume
3. Donna Garry | April 13th, 2011 at 9:13 am
Hey, just testing this message gets to you.
4. Sonia Waller | April 13th, 2011 at 10:14 am
Hi Tracey & Connor great to read your comments. Thinking of u both. Pat said to say Hi to Connor he hasn’t been doing alot. Kyle came over yesterday and had a sleepover and that was fun. All the best Sonia & Pat xxxx
5. Claudia | April 13th, 2011 at 7:40 pm
Hey guys, good to hear from you. Trace, pls tell Connor to think of me singing harmony on his next album whe things are tough – that’s sure to lift his spirits. Good Luck ! My thoughts and prayers are with you guys xxx
6. Kailee Richards | April 14th, 2011 at 8:15 am
Hi Connor. Glad to hear you made it to China safely. Good job on being brave – none of us here would be as brave. We hope that all goes well – we are all thinking of you. Kailee, Michael and the rest of VA.
7. Lorraine Hurley | April 14th, 2011 at 7:06 pm
Hi Tracey&Connor,finally worked out this blog thing!!! Great to read of your progress, Keep up the good work Connor(& Tracey). James and ben say a big HI to you and we can’t wait to catch-up when u come home, love to u both. keep safe!!(& warm!!)
Leave a Comment
Some HTML allowed:
<a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>
Trackback this post | Subscribe to the comments via RSS Feed