Connor 's Lebers congenital amaurosis Blog

An Interesting Afternoon

April 14th, 2011

Connor had his direct injection yesterday. It didn’t really start out well. Connor had to fast from 7am and the injection was scheduled for 2.30 which was ok but then it got delayed an hour. Then we went to the OR and they came out with the small syringe to sedate him. I’m looking at it thinking that wanna be strong because that’s not going to put him to sleep. I was right so they went back in and got another syringe and in it went. Just when we thought he was going to sleep he started talking again and they noticed his iv site had the sedative dripping so then they had to put in a new iv. Next thing they come back with another syringe which was twice the size of the other two put together. They finally wheeled him away singing Cher’s Turn Back Time which had us all laughing because his voice was all distorted from the sedative and do you know he came out still singing Turn Back Time. He was raving for about an hour after that. He’s had an immediate change where he can recognize if my hand is moving in front of his eyes which made me cry and I went out and told the nurses and they came to see for themselves which was great rather listening to a hysterical mum. Sorry I forgot to point out it was a direct injection just below his eye but it’s seems to be working on both.

We went down to the open markets today which was hard on Connor’s nose and mine too for that matter. I’ll have to go back without Connor next time because it was too hard to get him into some really tight spots.

Well that’s all for now

Entry Filed under: lebers congenital amaurosis