Last Treatment

April 20th, 2011

Hi Everyone,

Connor had his last treatment today which was another direct injection to the eye. Once again he didn’t go to sleep so the nurses and doctors kept him occupied by teaching him some Chinese. One of the other families found this toy that when you put the cards in and press on them it will speak Chinese and then English. So off to Walmart I go to get Connor one, which he has enjoyed playing all day. We had an Aussie family leave today, a Malaysian family leave Friday and there a few other families including us leaving on Saturday (WOO HOO) It seems like we have been here just as long as before because the treatments have been so close together but then other times it drags out because there is not much to do. I’m going down to the open markets once more to find Callan some Nike knockoffs or a jacket. I found a pair of Puma’s for myself for the grand price of $13.00 so I’m set :) Well that’s it for now. Talk soon.

Entry Filed under: lebers congenital amaurosis

1 Comment Add your own

  • 1. Jennifer  |  April 21st, 2011 at 9:01 am

    Hi! I have a 4 year old daughter who has LCA. She has the RDH12 gene affected. I was looking for other blogs about LCa, and came across yours.

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