Crowe’s SCA1 Blog

10 more days in the hospital

July 3rd, 2010

Time flies when your having fun…right???  It is hard to believe that next week is our last full week here at the hospital.

Last Wednesday Jeff had his spinal, as Hannah reported earlier.  However, he did have some severe back pains afterwards.  He was given some meds to help the pain and it did.  By the end of the 2nd day, he was feeling much better.  The doctors saw it is a sign the stem cells are working.  Supposedly some of the cells just collected near the injection site and stimulated the nerves there.  That caused the pain.  Once they moved on, he was fine:)

The doctors did the standard ataxia tests on him.  They look a lot like a field sobriety test.  He had to touch his fingers to the tip of his nose, run his heal down the front of his shin, and stand with his feet together-eyes shut-and arms outreached.  The doctor said he did better on all three of these tests.

He is feeling better, but the improvements are much more subtle and slow coming compared to last time.  He is gaining more fine motor skills, but the gross motor skills are still struggling.  He says he feels better–less dizzy.  He is able to do some “smaller” tasks easier-like brush his teeth and button his pants.

We have 2 more treatments next week on Monday and Friday.  Please pray for no headaches or backaches–or other side effects we have not experienced yet:)

After his treatments, we will travel to Beijing, starting the following Tuesday.  We will visit the Great Wall, Forbidden Palace, Summer Palace, and a traditional Chinese village.  This will be a nice ending to our trip.  Life in a hospital can be tough on us all.

13 days until we are in Atlanta   Hannah wanted to know if it was too early to start packing.

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