Comments for Devin' ONH Blog http://blog.stemcellschina.com/devin Getting Beike's Stem Cell Treatments Fri, 08 Aug 2008 20:02:17 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on *Home Sweet Home* by Nancy Vestigo http://blog.stemcellschina.com/devin/2008/05/29/home-sweet-home/comment-page-1/#comment-100 Nancy Vestigo Fri, 08 Aug 2008 20:02:17 +0000 http://blog.stemcellschina.com/devin/2008/05/29/home-sweet-home/#comment-100 Devin, What an exciting experience you must've had in China!! How are you doing now? I'm so curious as to the changes in your vision over the past few months, and the blog i pulled up on you has it's last entry when you first came home in May. Is there a more current one?? In reading the china stem cell site, most of the patients w/ ONH are children, & since I have a 31 year old daughter with ONH, I didn't know if treatments would work on adults. Well, you're getting close to adulthood, aren't you:) So I'm especially curious how things are going for you!! Looking forward to hearing from you, or at least receiving a link to an updated blog! Thanks, & God bless you, Nancy Vestigo Damascus, Oregon nvestigo@comcast.net Devin,

What an exciting experience you must’ve had in China!! How are you doing now? I’m so curious as to the changes in your vision over the past few months, and the blog i pulled up on you has it’s last entry when you first came home in May. Is there a more current one??

In reading the china stem cell site, most of the patients w/ ONH are children, & since I have a 31 year old daughter with ONH, I didn’t know if treatments would work on adults. Well, you’re getting close to adulthood, aren’t you:) So I’m especially curious how things are going for you!!

Looking forward to hearing from you, or at least receiving a link to an updated blog!

Thanks, & God bless you,
Nancy Vestigo
Damascus, Oregon
nvestigo@comcast.net

]]> Comment on *Goodbye Time* by Diana Maginn http://blog.stemcellschina.com/devin/2008/05/24/goodbye-time/comment-page-1/#comment-99 Diana Maginn Thu, 12 Jun 2008 02:20:17 +0000 http://blog.stemcellschina.com/devin/2008/05/24/goodbye-time/#comment-99 Hi Devin, I'm so glad to come across your page on Beike's site. I too have Optic Nerve Hypoplasia, and my husband and I have been researching Beike's treatments the past couple of months. I'm 28 years old and visually impaired, but not totally blind. I read standard print but have to look really close to everything, and I cannot drive as a result of my vision. I was hoping to find someone not as young or as significantly impaired as a lot of the patient's we've come across on here to see how treatment might effect me. It would mean so much to me to hear about any gains you've made with your vision and your honest feedback on the treatments, etc.. I believe I read you're from Philadelphia. I actually live in Jenkintown. I'm a Special Education Teacher. If you would be willing to respond to me via e-mail, i would be so appreciative f any feedback you could offer me. Thank you so much Devin. -Diana Maginn Hi Devin,
I’m so glad to come across your page on Beike’s site. I too have Optic Nerve Hypoplasia, and my husband and I have been researching Beike’s treatments the past couple of months. I’m 28 years old and visually impaired, but not totally blind. I read standard print but have to look really close to everything, and I cannot drive as a result of my vision. I was hoping to find someone not as young or as significantly impaired as a lot of the patient’s we’ve come across on here to see how treatment might effect me. It would mean so much to me to hear about any gains you’ve made with your vision and your honest feedback on the treatments, etc.. I believe I read you’re from Philadelphia. I actually live in Jenkintown. I’m a Special Education Teacher. If you would be willing to respond to me via e-mail, i would be so appreciative f any feedback you could offer me. Thank you so much Devin.
-Diana Maginn

]]> Comment on *Home Sweet Home* by Liz Habecker http://blog.stemcellschina.com/devin/2008/05/29/home-sweet-home/comment-page-1/#comment-98 Liz Habecker Fri, 30 May 2008 00:10:40 +0000 http://blog.stemcellschina.com/devin/2008/05/29/home-sweet-home/#comment-98 Hi Devon! so glad to hear that you guys made it back safely! I hope that you can catch up on your sleep and also healthy eating. :) We are all anxious to hear how you continue to do. you have been a role model for so many people! Thanks! Love, Liz Hi Devon!
so glad to hear that you guys made it back safely! I hope that you can catch up on your sleep and also healthy eating. :) We are all anxious to hear how you continue to do. you have been a role model for so many people! Thanks!
Love, Liz

]]> Comment on *Goodbye Time* by Carol http://blog.stemcellschina.com/devin/2008/05/24/goodbye-time/comment-page-1/#comment-97 Carol Sat, 24 May 2008 17:15:16 +0000 http://blog.stemcellschina.com/devin/2008/05/24/goodbye-time/#comment-97 Hi Devin; I met you when you went on the cruise out of Ft. Lauderdale - Bryan's aunt. I am so happy you are progressing so nicely! I have been lighting those candles and praying for you and PRAYER DOES WORK! I have several friends also offering prayers. Keep up the good work. Loved your site, my sister Kathy just sent it to me and I sent it to the others. Have a safe trip home. Keep me posted. Love Carol Hi Devin; I met you when you went on the cruise out of Ft. Lauderdale – Bryan’s aunt. I am so happy you are progressing so nicely! I have been lighting those candles and praying for you and PRAYER DOES WORK! I have several friends also offering prayers. Keep up the good work. Loved your site, my sister Kathy just sent it to me and I sent it to the others. Have a safe trip home. Keep me posted.
Love
Carol

]]> Comment on *My Last Treatment* by Aunt Beth http://blog.stemcellschina.com/devin/2008/05/23/my-last-treatment/comment-page-1/#comment-96 Aunt Beth Sat, 24 May 2008 02:46:29 +0000 http://blog.stemcellschina.com/devin/2008/05/23/my-last-treatment/#comment-96 Hey Dev, Watch when you get home, you'll probably want to sleep for weeks. HaHa! Well I'm glad it's over and I hope you have a save trip home. Talk to you then! Aunt Beth XO XO Hey Dev, Watch when you get home, you’ll probably want to sleep for weeks. HaHa! Well I’m glad it’s over and I hope you have a save trip home. Talk to you then! Aunt Beth XO XO

]]> Comment on *My Last Treatment* by Shel http://blog.stemcellschina.com/devin/2008/05/23/my-last-treatment/comment-page-1/#comment-95 Shel Sat, 24 May 2008 01:08:41 +0000 http://blog.stemcellschina.com/devin/2008/05/23/my-last-treatment/#comment-95 Hey there, happy to hear things are going so good!! I'm really proud of you. Can't wait to talk to you when you get back home. It's really been fun reading your blogs kiddo :) Luv, Shel Hey there, happy to hear things are going so good!! I’m really proud of you. Can’t wait to talk to you when you get back home. It’s really been fun reading your blogs kiddo :)
Luv,
Shel

]]> Comment on *My Last Treatment* by kathy Rizzo http://blog.stemcellschina.com/devin/2008/05/23/my-last-treatment/comment-page-1/#comment-94 kathy Rizzo Fri, 23 May 2008 13:37:00 +0000 http://blog.stemcellschina.com/devin/2008/05/23/my-last-treatment/#comment-94 Devin Wishing you all a safe trip home. Can't wait to see ya's. Love Kathy Devin
Wishing you all a safe trip home. Can’t wait to see ya’s.

Love Kathy

]]> Comment on *My Last Treatment* by Justin http://blog.stemcellschina.com/devin/2008/05/23/my-last-treatment/comment-page-1/#comment-93 Justin Fri, 23 May 2008 12:30:00 +0000 http://blog.stemcellschina.com/devin/2008/05/23/my-last-treatment/#comment-93 Have a safe trip home! Can't wait to meet up for lunch or something!!! Call me when you all get over the jet lag :) Have a safe trip home! Can’t wait to meet up for lunch or something!!! Call me when you all get over the jet lag :)

]]> Comment on *Bored…Bored…Bored* by Aunt Beth http://blog.stemcellschina.com/devin/2008/05/22/boredboredbored/comment-page-1/#comment-92 Aunt Beth Fri, 23 May 2008 02:02:32 +0000 http://blog.stemcellschina.com/devin/2008/05/22/boredboredbored/#comment-92 Hey Dev, You sound like me. Don't worry about it. I have a serious sleeping problem. Some times I don't know how I get out of bed in the mornings. I try to go to bed at a decent hour, but I lay there for 2 before I fall asleep and then I wake up at 3.00 or 4.00 in the morning and I'm wide a wake, but I think alot of you problem may be the treatments, anxiety, time change and just change of pace. I luv you and I'm glad that they finally told you that it may take several months before you see some kind of vision change. Donna (the tech that did your work up) is so concerned about you. She asks me all the time how are you doing, and today Dr. Knapp was really concerned as to how you were. They are all very concerned. Dr. Tyson & Dr. Knapp can't wait till you are home and are waiting to record results. They truely ask me questions all the time about what is going on, because I told them I answer your blogs all the time. I Luv you sweetie. My mom asked me again tonight for an update. She is concerned also. I Luv You. Can't wait to see you! Hey Dev, You sound like me. Don’t worry about it. I have a serious sleeping problem. Some times I don’t know how I get out of bed in the mornings. I try to go to bed at a decent hour, but I lay there for 2 before I fall asleep and then I wake up at 3.00 or 4.00 in the morning and I’m wide a wake, but I think alot of you problem may be the treatments, anxiety, time change and just change of pace. I luv you and I’m glad that they finally told you that it may take several months before you see some kind of vision change. Donna (the tech that did your work up) is so concerned about you. She asks me all the time how are you doing, and today Dr. Knapp was really concerned as to how you were. They are all very concerned. Dr. Tyson & Dr. Knapp can’t wait till you are home and are waiting to record results. They truely ask me questions all the time about what is going on, because I told them I answer your blogs all the time. I Luv you sweetie. My mom asked me again tonight for an update. She is concerned also. I Luv You. Can’t wait to see you!

]]> Comment on *Bored…Bored…Bored* by Joanne http://blog.stemcellschina.com/devin/2008/05/22/boredboredbored/comment-page-1/#comment-91 Joanne Thu, 22 May 2008 19:32:26 +0000 http://blog.stemcellschina.com/devin/2008/05/22/boredboredbored/#comment-91 Devin, This is Joanne from the cruise, Bryon's aunt. I have been thinking of you and praying for you. You are a trooper! Time must have felt like it was moving in slow motion. Bryon must be going crazy not getting to see you. Best of luck to you. I would love to hear from you. Love, Joanne Devin, This is Joanne from the cruise, Bryon’s aunt. I have been thinking of you and praying for you. You are a trooper! Time must have felt like it was moving in slow motion. Bryon must be going crazy not getting to see you.
Best of luck to you.
I would love to hear from you.
Love,
Joanne

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